News Feed Item

EPDA Launches Third and Final Life With Parkinson's Booklet to Help Improve the Everyday Lives of People With Parkinson's Disease

AMSTERDAM, October 8, 2012 /PRNewswire/ --

Launch helps mark the voluntary organisation's 20th anniversary celebrations in Amsterdam

The European Parkinson's Disease Association (EPDA) has launched the third and final booklet in its Life with Parkinson's series. This latest edition concludes a four-year awareness campaign, which aims to highlight the lack of understanding and knowledge concerning Parkinson's that exists throughout Europe today. The booklet's launch, in Amsterdam, the Netherlands, was one of the many activities in a weekend dedicated to celebrating the organisation's 20th anniversary year and its commitment to improving the lives of people with Parkinson's (PwPs).

To view the Multimedia News Release, please click:


The Life with Parkinson's awareness campaign began in 2008 and the accompanying booklet series has since achieved Europe-wide acclaim from the Parkinson's community, with people living with the disease and healthcare professionals praising the EPDA for its work. "We say that our condition and feelings are impossible to communicate, but this booklet persuaded me that there is a way to share our situation with others," said Bohumila Šindelářová, a PwP from the Czech Republic. "I have to praise all the booklets," added Olga Bandelj, a PwP from Slovenia. "They are very useful. I use them every day."

The first part of the campaign focused on the importance of early diagnosis and advanced Parkinson's management while the second part focused on the disease's non-motor symptoms and demonstrated the complexities associated with the condition.  

The third and final part of the Life with Parkinson's campaign addresses the necessity of an accurate diagnosis and demonstrates the importance of the right treatment for the right person at the right time. The guide, written by Parkinson's disease experts, provides practical advice for addressing the full range of challenges PwPs, their carers and healthcare professionals face. The booklet includes advice to assist early detection of Parkinson's symptoms, as well as coping strategies for PwPs and their families. In addition, specific solutions are suggested for common problems; for example, a 'symptoms diary' completed by PwPs may help healthcare professionals identify the early signs of 'wearing off', a major problem in Parkinson's.

"This booklet is an invaluable tool, filled with practical information for people with Parkinson's, their families and all healthcare professionals involved in their care and management," said EPDA vice-president Susanna Lindvall. "The EPDA is very proud of the Life with Parkinson's awareness campaign. We urge healthcare professionals and patient organisations to use and share this booklet as widely as possible as it offers several solutions to the many challenges that face people living with the disease."

The Amsterdam 20th anniversary weekend - "the ultimate EPDA occasion", according to Lindvall - kicked off on Friday 28 September with the first ever European Unity Walk, which saw over 1,000 EPDA supporters and friends, including hundreds of PwPs and their family supporters, taking part in an awareness-raising walk through the city. The following day the EPDA held its anniversary conference, which brought together PwPs and their family supporters, European Parkinson's organisations, patient groups, healthcare professionals and representatives from the treatment industry to share knowledge and expertise and discuss the latest Parkinson's-related news and discoveries.

Life with Parkinson's Part 3 was supported by an unrestricted educational grant and writing support provided by Teva Europe and Lundbeck Ltd

To download a copy of Life with Parkinson's Part 3 and to learn more about the Life with Parkinson's campaign, please visit http://www.epda.eu.com.

To find out more about the first ever European Unity Walk, please see its dedicated website:

Notes to Editors

Parkinson's disease

Parkinson's is a progressive, chronic and complex neurodegenerative disease that has no cure. It affects all aspects of daily living and is the most common neurodegenerative disease after Alzheimer's disease. The effects of Parkinson's invariably involve the physical, cognitive and psychological domains, and impact across nearly every cultural, social and economic boundary.

Parkinson's occurs as a result of the destruction of nerve cells in the brain that produce the neurotransmitter dopamine. Due to this lack of dopamine, messages in the brain fail to transmit smoothly to the muscles, resulting in difficulties controlling movement. A similar destruction occurs naturally with ageing, but in Parkinson's the process is accelerated.

There are more than 1.2 million people living with Parkinson's in Europe and this number is forecast to double by 2030 primarily as a result of the ageing population. The average age of onset is 60 years, although more than one in 10 people are diagnosed before the age of 50. Parkinson's is more prevalent in men than women, and may affect people of all ethnicities. It is important to remember that Parkinson's can affect anyone.


The EPDA is the only European Parkinson's disease umbrella organisation. It represents 45 member organisations from 36 European countries and advocates for the rights and needs of more than 1.2 million people with Parkinson's and their families.

By working with its 45 member associations the EPDA aims to:

  • ensure equal and timely access to prompt diagnosis and good-quality Parkinson's care across Europe by raising standards and reducing existing inequalities
  • increase public awareness of Parkinson's as a priority health challenge
  • help reduce stigma and remove discrimination against people with Parkinson's
  • support the development of national Parkinson's organisations throughout Europe

Olivia Mosley
[email protected]bm.com

Video: http://www.multivu.com/mnr/56619-epda-launches-life-with-parkinsons-booklet


More Stories By PR Newswire

Copyright © 2007 PR Newswire. All rights reserved. Republication or redistribution of PRNewswire content is expressly prohibited without the prior written consent of PRNewswire. PRNewswire shall not be liable for any errors or delays in the content, or for any actions taken in reliance thereon.

Latest Stories
"There's plenty of bandwidth out there but it's never in the right place. So what Cedexis does is uses data to work out the best pathways to get data from the origin to the person who wants to get it," explained Simon Jones, Evangelist and Head of Marketing at Cedexis, in this SYS-CON.tv interview at 21st Cloud Expo, held Oct 31 – Nov 2, 2017, at the Santa Clara Convention Center in Santa Clara, CA.
Digital Transformation and Disruption, Amazon Style - What You Can Learn. Chris Kocher is a co-founder of Grey Heron, a management and strategic marketing consulting firm. He has 25+ years in both strategic and hands-on operating experience helping executives and investors build revenues and shareholder value. He has consulted with over 130 companies on innovating with new business models, product strategies and monetization. Chris has held management positions at HP and Symantec in addition to ...
Enterprises have taken advantage of IoT to achieve important revenue and cost advantages. What is less apparent is how incumbent enterprises operating at scale have, following success with IoT, built analytic, operations management and software development capabilities - ranging from autonomous vehicles to manageable robotics installations. They have embraced these capabilities as if they were Silicon Valley startups.
In their session at @ThingsExpo, Shyam Varan Nath, Principal Architect at GE, and Ibrahim Gokcen, who leads GE's advanced IoT analytics, focused on the Internet of Things / Industrial Internet and how to make it operational for business end-users. Learn about the challenges posed by machine and sensor data and how to marry it with enterprise data. They also discussed the tips and tricks to provide the Industrial Internet as an end-user consumable service using Big Data Analytics and Industrial C...
René Bostic is the Technical VP of the IBM Cloud Unit in North America. Enjoying her career with IBM during the modern millennial technological era, she is an expert in cloud computing, DevOps and emerging cloud technologies such as Blockchain. Her strengths and core competencies include a proven record of accomplishments in consensus building at all levels to assess, plan, and implement enterprise and cloud computing solutions. René is a member of the Society of Women Engineers (SWE) and a m...
When talking IoT we often focus on the devices, the sensors, the hardware itself. The new smart appliances, the new smart or self-driving cars (which are amalgamations of many ‘things'). When we are looking at the world of IoT, we should take a step back, look at the big picture. What value are these devices providing. IoT is not about the devices, its about the data consumed and generated. The devices are tools, mechanisms, conduits. This paper discusses the considerations when dealing with the...
DXWordEXPO New York 2018, colocated with CloudEXPO New York 2018 will be held November 11-13, 2018, in New York City. Digital Transformation (DX) is a major focus with the introduction of DXWorldEXPO within the program. Successful transformation requires a laser focus on being data-driven and on using all the tools available that enable transformation if they plan to survive over the long term.
To Really Work for Enterprises, MultiCloud Adoption Requires Far Better and Inclusive Cloud Monitoring and Cost Management … But How? Overwhelmingly, even as enterprises have adopted cloud computing and are expanding to multi-cloud computing, IT leaders remain concerned about how to monitor, manage and control costs across hybrid and multi-cloud deployments. It’s clear that traditional IT monitoring and management approaches, designed after all for on-premises data centers, are falling short in ...
With privacy often voiced as the primary concern when using cloud based services, SyncriBox was designed to ensure that the software remains completely under the customer's control. Having both the source and destination files remain under the user?s control, there are no privacy or security issues. Since files are synchronized using Syncrify Server, no third party ever sees these files.
Mobile device usage has increased exponentially during the past several years, as consumers rely on handhelds for everything from news and weather to banking and purchases. What can we expect in the next few years? The way in which we interact with our devices will fundamentally change, as businesses leverage Artificial Intelligence. We already see this taking shape as businesses leverage AI for cost savings and customer responsiveness. This trend will continue, as AI is used for more sophistica...
"We are an integrator of carrier ethernet and bandwidth to get people to connect to the cloud, to the SaaS providers, and the IaaS providers all on ethernet," explained Paul Mako, CEO & CTO of Massive Networks, in this SYS-CON.tv interview at 21st Cloud Expo, held Oct 31 – Nov 2, 2017, at the Santa Clara Convention Center in Santa Clara, CA.
I believe that this may finally be the year that the CIO role ‘crosses the Rubicon,' leaving behind its traditional, IT-focused orientation. But I don't believe that either of the previous predictions of this outcome — fading into oblivion or rising to a business executive level — is correct. Instead, I think this is the year that we will see the role of the CIO transformed into something altogether different.
Cloud-enabled transformation has evolved from cost saving measure to business innovation strategy -- one that combines the cloud with cognitive capabilities to drive market disruption. Learn how you can achieve the insight and agility you need to gain a competitive advantage. Industry-acclaimed CTO and cloud expert, Shankar Kalyana presents. Only the most exceptional IBMers are appointed with the rare distinction of IBM Fellow, the highest technical honor in the company. Shankar has also receive...
"Calligo is a cloud service provider with data privacy at the heart of what we do. We are a typical Infrastructure as a Service cloud provider but it's been designed around data privacy," explained Julian Box, CEO and co-founder of Calligo, in this SYS-CON.tv interview at 21st Cloud Expo, held Oct 31 – Nov 2, 2017, at the Santa Clara Convention Center in Santa Clara, CA.
"NetApp is known as a data management leader but we do a lot more than just data management on-prem with the data centers of our customers. We're also big in the hybrid cloud," explained Wes Talbert, Principal Architect at NetApp, in this SYS-CON.tv interview at 21st Cloud Expo, held Oct 31 – Nov 2, 2017, at the Santa Clara Convention Center in Santa Clara, CA.