Welcome!

News Feed Item

EPDA Launches Third and Final Life With Parkinson's Booklet to Help Improve the Everyday Lives of People With Parkinson's Disease

AMSTERDAM, October 8, 2012 /PRNewswire/ --

Launch helps mark the voluntary organisation's 20th anniversary celebrations in Amsterdam

The European Parkinson's Disease Association (EPDA) has launched the third and final booklet in its Life with Parkinson's series. This latest edition concludes a four-year awareness campaign, which aims to highlight the lack of understanding and knowledge concerning Parkinson's that exists throughout Europe today. The booklet's launch, in Amsterdam, the Netherlands, was one of the many activities in a weekend dedicated to celebrating the organisation's 20th anniversary year and its commitment to improving the lives of people with Parkinson's (PwPs).

To view the Multimedia News Release, please click:

http://www.multivu.com/mnr/56619-epda-launches-life-with-parkinsons-booklet

The Life with Parkinson's awareness campaign began in 2008 and the accompanying booklet series has since achieved Europe-wide acclaim from the Parkinson's community, with people living with the disease and healthcare professionals praising the EPDA for its work. "We say that our condition and feelings are impossible to communicate, but this booklet persuaded me that there is a way to share our situation with others," said Bohumila Šindelářová, a PwP from the Czech Republic. "I have to praise all the booklets," added Olga Bandelj, a PwP from Slovenia. "They are very useful. I use them every day."

The first part of the campaign focused on the importance of early diagnosis and advanced Parkinson's management while the second part focused on the disease's non-motor symptoms and demonstrated the complexities associated with the condition.  

The third and final part of the Life with Parkinson's campaign addresses the necessity of an accurate diagnosis and demonstrates the importance of the right treatment for the right person at the right time. The guide, written by Parkinson's disease experts, provides practical advice for addressing the full range of challenges PwPs, their carers and healthcare professionals face. The booklet includes advice to assist early detection of Parkinson's symptoms, as well as coping strategies for PwPs and their families. In addition, specific solutions are suggested for common problems; for example, a 'symptoms diary' completed by PwPs may help healthcare professionals identify the early signs of 'wearing off', a major problem in Parkinson's.

"This booklet is an invaluable tool, filled with practical information for people with Parkinson's, their families and all healthcare professionals involved in their care and management," said EPDA vice-president Susanna Lindvall. "The EPDA is very proud of the Life with Parkinson's awareness campaign. We urge healthcare professionals and patient organisations to use and share this booklet as widely as possible as it offers several solutions to the many challenges that face people living with the disease."

The Amsterdam 20th anniversary weekend - "the ultimate EPDA occasion", according to Lindvall - kicked off on Friday 28 September with the first ever European Unity Walk, which saw over 1,000 EPDA supporters and friends, including hundreds of PwPs and their family supporters, taking part in an awareness-raising walk through the city. The following day the EPDA held its anniversary conference, which brought together PwPs and their family supporters, European Parkinson's organisations, patient groups, healthcare professionals and representatives from the treatment industry to share knowledge and expertise and discuss the latest Parkinson's-related news and discoveries.

Life with Parkinson's Part 3 was supported by an unrestricted educational grant and writing support provided by Teva Europe and Lundbeck Ltd

To download a copy of Life with Parkinson's Part 3 and to learn more about the Life with Parkinson's campaign, please visit http://www.epda.eu.com.

To find out more about the first ever European Unity Walk, please see its dedicated website:
http://www.europeanunitywalk.com.

Notes to Editors

Parkinson's disease

Parkinson's is a progressive, chronic and complex neurodegenerative disease that has no cure. It affects all aspects of daily living and is the most common neurodegenerative disease after Alzheimer's disease. The effects of Parkinson's invariably involve the physical, cognitive and psychological domains, and impact across nearly every cultural, social and economic boundary.

Parkinson's occurs as a result of the destruction of nerve cells in the brain that produce the neurotransmitter dopamine. Due to this lack of dopamine, messages in the brain fail to transmit smoothly to the muscles, resulting in difficulties controlling movement. A similar destruction occurs naturally with ageing, but in Parkinson's the process is accelerated.

There are more than 1.2 million people living with Parkinson's in Europe and this number is forecast to double by 2030 primarily as a result of the ageing population. The average age of onset is 60 years, although more than one in 10 people are diagnosed before the age of 50. Parkinson's is more prevalent in men than women, and may affect people of all ethnicities. It is important to remember that Parkinson's can affect anyone.

The EPDA

The EPDA is the only European Parkinson's disease umbrella organisation. It represents 45 member organisations from 36 European countries and advocates for the rights and needs of more than 1.2 million people with Parkinson's and their families.

By working with its 45 member associations the EPDA aims to:

  • ensure equal and timely access to prompt diagnosis and good-quality Parkinson's care across Europe by raising standards and reducing existing inequalities
  • increase public awareness of Parkinson's as a priority health challenge
  • help reduce stigma and remove discrimination against people with Parkinson's
  • support the development of national Parkinson's organisations throughout Europe

Olivia Mosley
Burson-Marsteller
+44-207-300-6257
[email protected]


Video: http://www.multivu.com/mnr/56619-epda-launches-life-with-parkinsons-booklet


 

More Stories By PR Newswire

Copyright © 2007 PR Newswire. All rights reserved. Republication or redistribution of PRNewswire content is expressly prohibited without the prior written consent of PRNewswire. PRNewswire shall not be liable for any errors or delays in the content, or for any actions taken in reliance thereon.

Latest Stories
In his general session at 18th Cloud Expo, Lee Atchison, Principal Cloud Architect and Advocate at New Relic, discussed cloud as a ‘better data center’ and how it adds new capacity (faster) and improves application availability (redundancy). The cloud is a ‘Dynamic Tool for Dynamic Apps’ and resource allocation is an integral part of your application architecture, so use only the resources you need and allocate /de-allocate resources on the fly.
IoT is fundamentally transforming the auto industry, turning the vehicle into a hub for connected services, including safety, infotainment and usage-based insurance. Auto manufacturers – and businesses across all verticals – have built an entire ecosystem around the Connected Car, creating new customer touch points and revenue streams. In his session at @ThingsExpo, Macario Namie, Head of IoT Strategy at Cisco Jasper, will share real-world examples of how IoT transforms the car from a static p...
Fifty billion connected devices and still no winning protocols standards. HTTP, WebSockets, MQTT, and CoAP seem to be leading in the IoT protocol race at the moment but many more protocols are getting introduced on a regular basis. Each protocol has its pros and cons depending on the nature of the communications. Does there really need to be only one protocol to rule them all? Of course not. In his session at @ThingsExpo, Chris Matthieu, co-founder and CTO of Octoblu, walk you through how Oct...
Web Real-Time Communication APIs have quickly revolutionized what browsers are capable of. In addition to video and audio streams, we can now bi-directionally send arbitrary data over WebRTC's PeerConnection Data Channels. With the advent of Progressive Web Apps and new hardware APIs such as WebBluetooh and WebUSB, we can finally enable users to stitch together the Internet of Things directly from their browsers while communicating privately and securely in a decentralized way.
"My role is working with customers, helping them go through this digital transformation. I spend a lot of time talking to banks, big industries, manufacturers working through how they are integrating and transforming their IT platforms and moving them forward," explained William Morrish, General Manager Product Sales at Interoute, in this SYS-CON.tv interview at 18th Cloud Expo, held June 7-9, 2016, at the Javits Center in New York City, NY.
More and more companies are looking to microservices as an architectural pattern for breaking apart applications into more manageable pieces so that agile teams can deliver new features quicker and more effectively. What this pattern has done more than anything to date is spark organizational transformations, setting the foundation for future application development. In practice, however, there are a number of considerations to make that go beyond simply “build, ship, and run,” which changes ho...
The Internet of Things can drive efficiency for airlines and airports. In their session at @ThingsExpo, Shyam Varan Nath, Principal Architect with GE, and Sudip Majumder, senior director of development at Oracle, will discuss the technical details of the connected airline baggage and related social media solutions. These IoT applications will enhance travelers' journey experience and drive efficiency for the airlines and the airports. The session will include a working demo and a technical d...
Kubernetes is a new and revolutionary open-sourced system for managing containers across multiple hosts in a cluster. Ansible is a simple IT automation tool for just about any requirement for reproducible environments. In his session at @DevOpsSummit at 18th Cloud Expo, Patrick Galbraith, a principal engineer at HPE, discussed how to build a fully functional Kubernetes cluster on a number of virtual machines or bare-metal hosts. Also included will be a brief demonstration of running a Galera M...
Why do your mobile transformations need to happen today? Mobile is the strategy that enterprise transformation centers on to drive customer engagement. In his general session at @ThingsExpo, Roger Woods, Director, Mobile Product & Strategy – Adobe Marketing Cloud, covered key IoT and mobile trends that are forcing mobile transformation, key components of a solid mobile strategy and explored how brands are effectively driving mobile change throughout the enterprise.
Developing software for the Internet of Things (IoT) comes with its own set of challenges. Security, privacy, and unified standards are a few key issues. In addition, each IoT product is comprised of (at least) three separate application components: the software embedded in the device, the back-end service, and the mobile application for the end user’s controls. Each component is developed by a different team, using different technologies and practices, and deployed to a different stack/target –...
Identity is in everything and customers are looking to their providers to ensure the security of their identities, transactions and data. With the increased reliance on cloud-based services, service providers must build security and trust into their offerings, adding value to customers and improving the user experience. Making identity, security and privacy easy for customers provides a unique advantage over the competition.
All clouds are not equal. To succeed in a DevOps context, organizations should plan to develop/deploy apps across a choice of on-premise and public clouds simultaneously depending on the business needs. This is where the concept of the Lean Cloud comes in - resting on the idea that you often need to relocate your app modules over their life cycles for both innovation and operational efficiency in the cloud. In his session at @DevOpsSummit at19th Cloud Expo, Valentin (Val) Bercovici, CTO of So...
SYS-CON Events announced today that Commvault, a global leader in enterprise data protection and information management, has been named “Bronze Sponsor” of SYS-CON's 19th International Cloud Expo, which will take place on November 1–3, 2016, at the Santa Clara Convention Center in Santa Clara, CA. Commvault is a leading provider of data protection and information management solutions, helping companies worldwide activate their data to drive more value and business insight and to transform moder...
SYS-CON Events announced today that eCube Systems, a leading provider of middleware modernization, integration, and management solutions, will exhibit at @DevOpsSummit at 19th International Cloud Expo, which will take place on November 1–3, 2016, at the Santa Clara Convention Center in Santa Clara, CA. eCube Systems offers a family of middleware evolution products and services that maximize return on technology investment by leveraging existing technical equity to meet evolving business needs. ...
SYS-CON Events has announced today that Roger Strukhoff has been named conference chair of Cloud Expo and @ThingsExpo 2016 Silicon Valley. The 19th Cloud Expo and 6th @ThingsExpo will take place on November 1-3, 2016, at the Santa Clara Convention Center in Santa Clara, CA. "The Internet of Things brings trillions of dollars of opportunity to developers and enterprise IT, no matter how you measure it," stated Roger Strukhoff. "More importantly, it leverages the power of devices and the Interne...