Welcome!

News Feed Item

EPDA Launches Third and Final Life With Parkinson's Booklet to Help Improve the Everyday Lives of People With Parkinson's Disease

AMSTERDAM, October 8, 2012 /PRNewswire/ --

Launch helps mark the voluntary organisation's 20th anniversary celebrations in Amsterdam

The European Parkinson's Disease Association (EPDA) has launched the third and final booklet in its Life with Parkinson's series. This latest edition concludes a four-year awareness campaign, which aims to highlight the lack of understanding and knowledge concerning Parkinson's that exists throughout Europe today. The booklet's launch, in Amsterdam, the Netherlands, was one of the many activities in a weekend dedicated to celebrating the organisation's 20th anniversary year and its commitment to improving the lives of people with Parkinson's (PwPs).

To view the Multimedia News Release, please click:

http://www.multivu.com/mnr/56619-epda-launches-life-with-parkinsons-booklet

The Life with Parkinson's awareness campaign began in 2008 and the accompanying booklet series has since achieved Europe-wide acclaim from the Parkinson's community, with people living with the disease and healthcare professionals praising the EPDA for its work. "We say that our condition and feelings are impossible to communicate, but this booklet persuaded me that there is a way to share our situation with others," said Bohumila Šindelářová, a PwP from the Czech Republic. "I have to praise all the booklets," added Olga Bandelj, a PwP from Slovenia. "They are very useful. I use them every day."

The first part of the campaign focused on the importance of early diagnosis and advanced Parkinson's management while the second part focused on the disease's non-motor symptoms and demonstrated the complexities associated with the condition.  

The third and final part of the Life with Parkinson's campaign addresses the necessity of an accurate diagnosis and demonstrates the importance of the right treatment for the right person at the right time. The guide, written by Parkinson's disease experts, provides practical advice for addressing the full range of challenges PwPs, their carers and healthcare professionals face. The booklet includes advice to assist early detection of Parkinson's symptoms, as well as coping strategies for PwPs and their families. In addition, specific solutions are suggested for common problems; for example, a 'symptoms diary' completed by PwPs may help healthcare professionals identify the early signs of 'wearing off', a major problem in Parkinson's.

"This booklet is an invaluable tool, filled with practical information for people with Parkinson's, their families and all healthcare professionals involved in their care and management," said EPDA vice-president Susanna Lindvall. "The EPDA is very proud of the Life with Parkinson's awareness campaign. We urge healthcare professionals and patient organisations to use and share this booklet as widely as possible as it offers several solutions to the many challenges that face people living with the disease."

The Amsterdam 20th anniversary weekend - "the ultimate EPDA occasion", according to Lindvall - kicked off on Friday 28 September with the first ever European Unity Walk, which saw over 1,000 EPDA supporters and friends, including hundreds of PwPs and their family supporters, taking part in an awareness-raising walk through the city. The following day the EPDA held its anniversary conference, which brought together PwPs and their family supporters, European Parkinson's organisations, patient groups, healthcare professionals and representatives from the treatment industry to share knowledge and expertise and discuss the latest Parkinson's-related news and discoveries.

Life with Parkinson's Part 3 was supported by an unrestricted educational grant and writing support provided by Teva Europe and Lundbeck Ltd

To download a copy of Life with Parkinson's Part 3 and to learn more about the Life with Parkinson's campaign, please visit http://www.epda.eu.com.

To find out more about the first ever European Unity Walk, please see its dedicated website:
http://www.europeanunitywalk.com.

Notes to Editors

Parkinson's disease

Parkinson's is a progressive, chronic and complex neurodegenerative disease that has no cure. It affects all aspects of daily living and is the most common neurodegenerative disease after Alzheimer's disease. The effects of Parkinson's invariably involve the physical, cognitive and psychological domains, and impact across nearly every cultural, social and economic boundary.

Parkinson's occurs as a result of the destruction of nerve cells in the brain that produce the neurotransmitter dopamine. Due to this lack of dopamine, messages in the brain fail to transmit smoothly to the muscles, resulting in difficulties controlling movement. A similar destruction occurs naturally with ageing, but in Parkinson's the process is accelerated.

There are more than 1.2 million people living with Parkinson's in Europe and this number is forecast to double by 2030 primarily as a result of the ageing population. The average age of onset is 60 years, although more than one in 10 people are diagnosed before the age of 50. Parkinson's is more prevalent in men than women, and may affect people of all ethnicities. It is important to remember that Parkinson's can affect anyone.

The EPDA

The EPDA is the only European Parkinson's disease umbrella organisation. It represents 45 member organisations from 36 European countries and advocates for the rights and needs of more than 1.2 million people with Parkinson's and their families.

By working with its 45 member associations the EPDA aims to:

  • ensure equal and timely access to prompt diagnosis and good-quality Parkinson's care across Europe by raising standards and reducing existing inequalities
  • increase public awareness of Parkinson's as a priority health challenge
  • help reduce stigma and remove discrimination against people with Parkinson's
  • support the development of national Parkinson's organisations throughout Europe

Olivia Mosley
Burson-Marsteller
+44-207-300-6257
[email protected]


Video: http://www.multivu.com/mnr/56619-epda-launches-life-with-parkinsons-booklet


 

More Stories By PR Newswire

Copyright © 2007 PR Newswire. All rights reserved. Republication or redistribution of PRNewswire content is expressly prohibited without the prior written consent of PRNewswire. PRNewswire shall not be liable for any errors or delays in the content, or for any actions taken in reliance thereon.

Latest Stories
"We're here to tell the world about our cloud-scale infrastructure that we have at Juniper combined with the world-class security that we put into the cloud," explained Lisa Guess, VP of Systems Engineering at Juniper Networks, in this SYS-CON.tv interview at 20th Cloud Expo, held June 6-8, 2017, at the Javits Center in New York City, NY.
Your homes and cars can be automated and self-serviced. Why can't your storage? From simply asking questions to analyze and troubleshoot your infrastructure, to provisioning storage with snapshots, recovery and replication, your wildest sci-fi dream has come true. In his session at @DevOpsSummit at 20th Cloud Expo, Dan Florea, Director of Product Management at Tintri, provided a ChatOps demo where you can talk to your storage and manage it from anywhere, through Slack and similar services with...
"We were founded in 2003 and the way we were founded was about good backup and good disaster recovery for our clients, and for the last 20 years we've been pretty consistent with that," noted Marc Malafronte, Territory Manager at StorageCraft, in this SYS-CON.tv interview at 20th Cloud Expo, held June 6-8, 2017, at the Javits Center in New York City, NY.
"At the keynote this morning we spoke about the value proposition of Nutanix, of having a DevOps culture and a mindset, and the business outcomes of achieving agility and scale, which everybody here is trying to accomplish," noted Mark Lavi, DevOps Solution Architect at Nutanix, in this SYS-CON.tv interview at @DevOpsSummit at 20th Cloud Expo, held June 6-8, 2017, at the Javits Center in New York City, NY.
"We are an IT services solution provider and we sell software to support those solutions. Our focus and key areas are around security, enterprise monitoring, and continuous delivery optimization," noted John Balsavage, President of A&I Solutions, in this SYS-CON.tv interview at 20th Cloud Expo, held June 6-8, 2017, at the Javits Center in New York City, NY.
"DivvyCloud as a company set out to help customers automate solutions to the most common cloud problems," noted Jeremy Snyder, VP of Business Development at DivvyCloud, in this SYS-CON.tv interview at 20th Cloud Expo, held June 6-8, 2017, at the Javits Center in New York City, NY.
"We provide IoT solutions. We provide the most compatible solutions for many applications. Our solutions are industry agnostic and also protocol agnostic," explained Richard Han, Head of Sales and Marketing and Engineering at Systena America, in this SYS-CON.tv interview at @ThingsExpo, held June 6-8, 2017, at the Javits Center in New York City, NY.
"We want to show that our solution is far less expensive with a much better total cost of ownership so we announced several key features. One is called geo-distributed erasure coding, another is support for KVM and we introduced a new capability called Multi-Part," explained Tim Desai, Senior Product Marketing Manager at Hitachi Data Systems, in this SYS-CON.tv interview at 20th Cloud Expo, held June 6-8, 2017, at the Javits Center in New York City, NY.
There is a huge demand for responsive, real-time mobile and web experiences, but current architectural patterns do not easily accommodate applications that respond to events in real time. Common solutions using message queues or HTTP long-polling quickly lead to resiliency, scalability and development velocity challenges. In his session at 21st Cloud Expo, Ryland Degnan, a Senior Software Engineer on the Netflix Edge Platform team, will discuss how by leveraging a reactive stream-based protocol,...
SYS-CON Events announced today that Calligo, an innovative cloud service provider offering mid-sized companies the highest levels of data privacy and security, has been named "Bronze Sponsor" of SYS-CON's 21st International Cloud Expo ®, which will take place on Oct 31 - Nov 2, 2017, at the Santa Clara Convention Center in Santa Clara, CA. Calligo offers unparalleled application performance guarantees, commercial flexibility and a personalised support service from its globally located cloud plat...
DevOps at Cloud Expo, taking place October 31 - November 2, 2017, at the Santa Clara Convention Center in Santa Clara, CA, is co-located with 21st Cloud Expo and will feature technical sessions from a rock star conference faculty and the leading industry players in the world. The widespread success of cloud computing is driving the DevOps revolution in enterprise IT. Now as never before, development teams must communicate and collaborate in a dynamic, 24/7/365 environment. There is no time to w...
Internet of @ThingsExpo, taking place October 31 - November 2, 2017, at the Santa Clara Convention Center in Santa Clara, CA, is co-located with 21st Cloud Expo and will feature technical sessions from a rock star conference faculty and the leading industry players in the world. The Internet of Things (IoT) is the most profound change in personal and enterprise IT since the creation of the Worldwide Web more than 20 years ago. All major researchers estimate there will be tens of billions devic...
"The Striim platform is a full end-to-end streaming integration and analytics platform that is middleware that covers a lot of different use cases," explained Steve Wilkes, Founder and CTO at Striim, in this SYS-CON.tv interview at 20th Cloud Expo, held June 6-8, 2017, at the Javits Center in New York City, NY.
"With Digital Experience Monitoring what used to be a simple visit to a web page has exploded into app on phones, data from social media feeds, competitive benchmarking - these are all components that are only available because of some type of digital asset," explained Leo Vasiliou, Director of Web Performance Engineering at Catchpoint Systems, in this SYS-CON.tv interview at DevOps Summit at 20th Cloud Expo, held June 6-8, 2017, at the Javits Center in New York City, NY.
21st International Cloud Expo, taking place October 31 - November 2, 2017, at the Santa Clara Convention Center in Santa Clara, CA, will feature technical sessions from a rock star conference faculty and the leading industry players in the world. Cloud computing is now being embraced by a majority of enterprises of all sizes. Yesterday's debate about public vs. private has transformed into the reality of hybrid cloud: a recent survey shows that 74% of enterprises have a hybrid cloud strategy. Me...