Welcome!

News Feed Item

Canadians want palliative and end-of-life care support - but they don't know how or where to access it

OTTAWA, Jan. 23, 2014 /CNW/ - Nearly every Canadian believes that hospice palliative and end-of-life care are critical and should be available to anyone in need, but most do not know what services are available - or how to access them. A new Harris/Decima survey reveals that while the vast majority of Canadians support hospice palliative care, and integrating services as early as possible for people who are critically ill or aging, there remain many barriers to connecting people with those programs and services across the country.1

"We know that introducing a broad range of palliative services earlier to people who are very ill, aging, or frail improves quality of life for people to live well until they die. It also provides a sense of control and reduces stress for the family," says Sharon Baxter, Executive Director, Canadian Hospice Palliative Care Association.  "But most Canadians don't know what services are available - or that these services are available to people living at home. Given we are all living longer, often with chronic illness, this needs to change."

The Harris/Decima survey was conducted for The Way Forward, a three year nation-wide initiative that is working with healthcare professionals and governments to integrate high quality hospice palliative care earlier into the ongoing care of Canadians with serious life-limiting illness.

"Our Government understands the very difficult challenges faced by Canadian families when they are caring for aging parents and other loved ones who need palliative care," says the Honourable Rona Ambrose, Minister of Health. "Supporting The Way Forward initiative will help to deliver palliative care in a range of settings, by a variety of providers, while providing services in a cost-effective and sustainable way."

The Harris/Decima survey identified five main findings:

  1. Support for palliative care: There is nearly unanimous support among Canadians for hospice palliative care (96%), with the vast majority believing it has a positive impact in reducing stress and the burden on the family (93%) and improving quality of life (94%).
  2. A team approach early on: Most Canadians (87%) believe that a palliative approach to care should be available early on in the course of a disease and most (94%) believe it should include all of their care providers - whether a family physician and nurse, a disease specialist and other health professionals.
  3. A desire for choice: Nearly all Canadians (93%) believe palliative care services should be available in the setting of their choice (e.g. home, long-term care, hospital, etc.) but less than half (49%) are aware they can access these services outside of a hospital, hospice or facility and currently relatively few (21%) report having any personal experience with palliative care services.
  4. A disconnect between belief and action: Although nearly all Canadians (96%) believe it is important to have a conversation with loved ones about their wishes for care, not many (34%) have actually had a discussion, and only 13% have completed an Advance Care Plan to communicate their wishes.
  5. Open to guidance for early conversations: The majority of Canadians (73%) would like to get more information from their doctors so that they can plan and begin these important conversations. And most Canadians (80%) also feel these conversations should start when they are healthy or when they are diagnosed with a life-limiting disease.

"It's clear that we need to better integrate palliative care services in the places where people want to live and die - and we also need to encourage patients, families and health care teams to talk about goals of care so more Canadians get the care want and deserve up to the end of life," says Nadine Henningsen, Executive Director, Canadian Homecare Association.

Tools and resources to help people learn more about palliative and end-of-life care services and to start the conversation with a loved one can be found at the Canadian Hospice Palliative Care Association website (www.chpca.net), as well as through Speak Up: Start the Conversation about End-of-life Care (www.advancecareplanning.ca). Information about work underway to integrate the palliative approach to care through The Way Forward initiative can be found at www.hpcintegration.ca.

The Way Forward: an integrated palliative approach to care
Launched in 2012, this three-year initiative funded by the Government of Canada seeks to change how Canada thinks about and approaches aging, chronic, serious and life limiting illness and dying; and how to extend the benefits of hospice palliative and end-of-life care, and advance care planning, to as many Canadians as possible. Tapping into palliative care knowledge and expertise across Canada, The Way Forward is focused on fostering collaboration between provincial and territorial governments, regional health authorities, agencies, clinicians and service providers, among others to improve quality of life, reduce emergency visits and hospitalizations, and make more effective use of health system resources.

_______________________________

1 A quantitative online research survey of 2,976 Canadian adults. Completed using Harris/Decima's proprietary online
panel so is precluded from reporting a margin of error. Data were collected between July 5 and August 7 2013. Survey
data were weighted using 2011 Census to reflect general population (gender, age and region).

 

SOURCE Canadian Hospice Palliative Care Association

Image with caption: "Canadian Hospice Palliative Care Association (CNW Group/Canadian Hospice Palliative Care Association)". Image available at: http://photos.newswire.ca/images/download/20140123_C4571_PHOTO_EN_35774.jpg

More Stories By PR Newswire

Copyright © 2007 PR Newswire. All rights reserved. Republication or redistribution of PRNewswire content is expressly prohibited without the prior written consent of PRNewswire. PRNewswire shall not be liable for any errors or delays in the content, or for any actions taken in reliance thereon.

Latest Stories
"We've discovered that after shows 80% if leads that people get, 80% of the conversations end up on the show floor, meaning people forget about it, people forget who they talk to, people forget that there are actual business opportunities to be had here so we try to help out and keep the conversations going," explained Jeff Mesnik, Founder and President of ContentMX, in this SYS-CON.tv interview at 18th Cloud Expo, held June 7-9, 2016, at the Javits Center in New York City, NY.
Let’s face it, embracing new storage technologies, capabilities and upgrading to new hardware often adds complexity and increases costs. In his session at 18th Cloud Expo, Seth Oxenhorn, Vice President of Business Development & Alliances at FalconStor, discussed how a truly heterogeneous software-defined storage approach can add value to legacy platforms and heterogeneous environments. The result reduces complexity, significantly lowers cost, and provides IT organizations with improved efficienc...
SYS-CON Events announced today that Isomorphic Software will exhibit at DevOps Summit at 19th International Cloud Expo, which will take place on November 1–3, 2016, at the Santa Clara Convention Center in Santa Clara, CA. Isomorphic Software provides the SmartClient HTML5/AJAX platform, the most advanced technology for building rich, cutting-edge enterprise web applications for desktop and mobile. SmartClient combines the productivity and performance of traditional desktop software with the simp...
"When you think about the data center today, there's constant evolution, The evolution of the data center and the needs of the consumer of technology change, and they change constantly," stated Matt Kalmenson, VP of Sales, Service and Cloud Providers at Veeam Software, in this SYS-CON.tv interview at 18th Cloud Expo, held June 7-9, 2016, at the Javits Center in New York City, NY.
Internet of @ThingsExpo, taking place November 1-3, 2016, at the Santa Clara Convention Center in Santa Clara, CA, is co-located with the 19th International Cloud Expo and will feature technical sessions from a rock star conference faculty and the leading industry players in the world and ThingsExpo Silicon Valley Call for Papers is now open.
In his session at @DevOpsSummit at 19th Cloud Expo, Yoseph Reuveni, Director of Software Engineering at Jet.com, will discuss Jet.com's journey into containerizing Microsoft-based technologies like C# and F# into Docker. He will talk about lessons learned and challenges faced, the Mono framework tryout and how they deployed everything into Azure cloud. Yoseph Reuveni is a technology leader with unique experience developing and running high throughput (over 1M tps) distributed systems with extre...
The IoT is changing the way enterprises conduct business. In his session at @ThingsExpo, Eric Hoffman, Vice President at EastBanc Technologies, discussed how businesses can gain an edge over competitors by empowering consumers to take control through IoT. He cited examples such as a Washington, D.C.-based sports club that leveraged IoT and the cloud to develop a comprehensive booking system. He also highlighted how IoT can revitalize and restore outdated business models, making them profitable ...
To leverage Continuous Delivery, enterprises must consider impacts that span functional silos, as well as applications that touch older, slower moving components. Managing the many dependencies can cause slowdowns. See how to achieve continuous delivery in the enterprise.
"delaPlex is a software development company. We do team-based outsourcing development," explained Mark Rivers, COO and Co-founder of delaPlex Software, in this SYS-CON.tv interview at 18th Cloud Expo, held June 7-9, 2016, at the Javits Center in New York City, NY.
We all know the latest numbers: Gartner, Inc. forecasts that 6.4 billion connected things will be in use worldwide in 2016, up 30 percent from last year, and will reach 20.8 billion by 2020. We're rapidly approaching a data production of 40 zettabytes a day – more than we can every physically store, and exabytes and yottabytes are just around the corner. For many that’s a good sign, as data has been proven to equal money – IF it’s ingested, integrated, and analyzed fast enough. Without real-ti...
"There's a growing demand from users for things to be faster. When you think about all the transactions or interactions users will have with your product and everything that is between those transactions and interactions - what drives us at Catchpoint Systems is the idea to measure that and to analyze it," explained Leo Vasiliou, Director of Web Performance Engineering at Catchpoint Systems, in this SYS-CON.tv interview at 18th Cloud Expo, held June 7-9, 2016, at the Javits Center in New York Ci...
I wanted to gather all of my Internet of Things (IOT) blogs into a single blog (that I could later use with my University of San Francisco (USF) Big Data “MBA” course). However as I started to pull these blogs together, I realized that my IOT discussion lacked a vision; it lacked an end point towards which an organization could drive their IOT envisioning, proof of value, app dev, data engineering and data science efforts. And I think that the IOT end point is really quite simple…
As companies gain momentum, the need to maintain high quality products can outstrip their development team’s bandwidth for QA. Building out a large QA team (whether in-house or outsourced) can slow down development and significantly increases costs. This eBook takes QA profiles from 5 companies who successfully scaled up production without building a large QA team and includes: What to consider when choosing CI/CD tools How culture and communication can make or break implementation
Actian Corporation has announced the latest version of the Actian Vector in Hadoop (VectorH) database, generally available at the end of July. VectorH is based on the same query engine that powers Actian Vector, which recently doubled the TPC-H benchmark record for non-clustered systems at the 3000GB scale factor (see tpc.org/3323). The ability to easily ingest information from different data sources and rapidly develop queries to make better business decisions is becoming increasingly importan...
Redis is not only the fastest database, but it is the most popular among the new wave of databases running in containers. Redis speeds up just about every data interaction between your users or operational systems. In his session at 19th Cloud Expo, Dave Nielsen, Developer Advocate, Redis Labs, will share the functions and data structures used to solve everyday use cases that are driving Redis' popularity.