News Feed Item

Dystonia Europe and the European Parkinson's Disease Association (EPDA) Partner With Boston Scientific in Advancing Parkinson's and Dystonia Care

LONDON, February 24, 2014 /PRNewswire/ --

Dystonia Europe (DE) and the European Parkinson's Disease Association (EPDA) announced today that they are collaborating with Boston Scientific Corporation (NYSE:BSX), a global medical technology leader. The aim of these partnerships is to increase awareness, understanding of solutions and to take initiatives in the worldwide fight against Parkinson's disease and dystonia, two areas of high unmet need.

Both Parkinson's and dystonia are neurological diseases which include involuntary body movements such as tremors, sustained muscle contractions and abnormal twisting or postures, often referred to as motor symptoms. These symptoms can worsen over time due to the chronic and progressive nature of these conditions. For people living with Parkinson's or dystonia, they can be painful and interfere with managing daily living activities.

Parkinson's disease affects approximately 1.2 million Europeans and seven to ten million people worldwide.[1],[2] Parkinson's is the second most common neurodegenerative disease after Alzheimer's and is forecast to double by 2030 as the population ages.[3] In comparison, dystonia is the third most common movement disorder after Parkinson's disease and essential tremor[4]. It affects more than 500,000 people across Europe, including children and adults.[5]

"Ongoing educational efforts are needed to extend awareness of dystonia in Europe. We aim to connect people and organizations for dystonia to improve the quality of life for people living with dystonia, to stimulate research for more effective treatments and ultimately, to find a cure. We are partnering with leading companies in this field in achieving this goal and we are delighted about this partnership with Boston Scientific," said Robert Scholten, President of Dystonia Europe.

"In Europe alone, the facts about Parkinson's disease are startling. The tremendous economic and social burden will increase even more in the years to come, so we need to take action now to limit the impact on people with Parkinson's, their families, carers and society as a whole. At the EPDA, we realized that we can only make a difference and be successful if we collaborate and share knowledge, so we are looking forward to working with Boston Scientific," said Knut-Johan Onarheim, President of EPDA.

Under the terms of these equal partnerships, Dystonia Europe, the EPDA and Boston Scientific will work together on practical initiatives to improve Parkinson's and dystonia care in Europe. Boston Scientific is determined to innovate the treatment of both neurological disorders: Recently, the company developed a new deep brain stimulation system (DBS) called Vercise™. It is the first system designed to selectively stimulate targeted areas of the brain, which helps to customize therapy and manages symptoms of Parkinson's disease and dystonia syndromes.

"Neurological diseases are among the greatest healthcare challenges we currently face. At Boston Scientific, we are committed to improving how the diseases are managed today and developing innovative medical technologies that have a real impact on people's lives. We are very pleased that we have the opportunity to work together with such strong and valued partners to advance dystonia and Parkinson's care in Europe," said Maulik Nanavaty, Senior Vice President and President of Neuromodulation at Boston Scientific.

Dystonia Europe - Connecting People for Dystonia

Dystonia Europe is the platform at the European level for all dystonia stakeholders in Europe.

DE works in partnership with patient advocacy groups, clinicians, researchers, healthcare professionals, and the pharmaceutical and medical device industry. By connecting people across Europe, DE aims to raise awareness, spread information and promote research within the field of dystonia. For more information please visit http://dystonia-europe.org  

About EPDA

The European Parkinson's Disease Association (EPDA) is the only European Parkinson's disease umbrella organisation. Founded in 1992, EPDA is a non-profit organisation advocating for the rights and needs of those living with Parkinson's and their caregivers.

For more information please visit http://www.epda.eu.com/en

About Boston Scientific

Boston Scientific transforms lives through innovative medical solutions that improve the health of patients around the world. As a global medical technology leader for more than 30 years, we advance science for life by providing a broad range of high performance solutions that address unmet patient needs and reduce the cost of healthcare. For more information, visit http://www.bostonscientific.com and connect on Twitter and Facebook.


Dystonia Europe
Robert Scholten, President
[email protected]  

Dominic Graham, Head of Editorial and Brand Communications
[email protected]

Boston Scientific Corporation
Simonetta Balbi, PR and Corporate Communication Europe
+39-3387936422 (mobile)
+39-0106060281 (direct)
[email protected]


1. European Parkinson's Disease Association 2013. http://www.epda.eu.com/en/about-the-epda/ [http://www.epda.eu.com/en/about-the-epda ]  Date accessed 4 December 2013.

2. Parkinson's Disease Foundation 2012. http://www.pdf.org/en/parkinson_statistics  Date accessed 12 November 2013.

3. European Parkinson's Disease Association 2013. http://www.epda.eu.com/en/about-the-epda/ [http://www.epda.eu.com/en/about-the-epda ] Date accessed 4 December 2013.

4. Dystonia Europe. Dystonia. http://dystonia-europe.org/about-dystonia/dystonia/ [http://dystonia-europe.org/about-dystonia/dystonia ]  Date accessed 14 November 2013.

5. Epidemiology study of dystonia in Europe (ESDE) Collaborative Group. A prevalence study of primary dystonia in eight European countries. J. Neurology. 2000. 247:787-792.

More Stories By PR Newswire

Copyright © 2007 PR Newswire. All rights reserved. Republication or redistribution of PRNewswire content is expressly prohibited without the prior written consent of PRNewswire. PRNewswire shall not be liable for any errors or delays in the content, or for any actions taken in reliance thereon.

Latest Stories
"NetApp is known as a data management leader but we do a lot more than just data management on-prem with the data centers of our customers. We're also big in the hybrid cloud," explained Wes Talbert, Principal Architect at NetApp, in this SYS-CON.tv interview at 21st Cloud Expo, held Oct 31 – Nov 2, 2017, at the Santa Clara Convention Center in Santa Clara, CA.
Andrew Keys is Co-Founder of ConsenSys Enterprise. He comes to ConsenSys Enterprise with capital markets, technology and entrepreneurial experience. Previously, he worked for UBS investment bank in equities analysis. Later, he was responsible for the creation and distribution of life settlement products to hedge funds and investment banks. After, he co-founded a revenue cycle management company where he learned about Bitcoin and eventually Ethereal. Andrew's role at ConsenSys Enterprise is a mul...
Evan Kirstel is an internationally recognized thought leader and social media influencer in IoT (#1 in 2017), Cloud, Data Security (2016), Health Tech (#9 in 2017), Digital Health (#6 in 2016), B2B Marketing (#5 in 2015), AI, Smart Home, Digital (2017), IIoT (#1 in 2017) and Telecom/Wireless/5G. His connections are a "Who's Who" in these technologies, He is in the top 10 most mentioned/re-tweeted by CMOs and CIOs (2016) and have been recently named 5th most influential B2B marketeer in the US. H...
The best way to leverage your Cloud Expo presence as a sponsor and exhibitor is to plan your news announcements around our events. The press covering Cloud Expo and @ThingsExpo will have access to these releases and will amplify your news announcements. More than two dozen Cloud companies either set deals at our shows or have announced their mergers and acquisitions at Cloud Expo. Product announcements during our show provide your company with the most reach through our targeted audiences.
DevOpsSummit New York 2018, colocated with CloudEXPO | DXWorldEXPO New York 2018 will be held November 11-13, 2018, in New York City. Digital Transformation (DX) is a major focus with the introduction of DXWorldEXPO within the program. Successful transformation requires a laser focus on being data-driven and on using all the tools available that enable transformation if they plan to survive over the long term. A total of 88% of Fortune 500 companies from a generation ago are now out of bus...
With 10 simultaneous tracks, keynotes, general sessions and targeted breakout classes, @CloudEXPO and DXWorldEXPO are two of the most important technology events of the year. Since its launch over eight years ago, @CloudEXPO and DXWorldEXPO have presented a rock star faculty as well as showcased hundreds of sponsors and exhibitors! In this blog post, we provide 7 tips on how, as part of our world-class faculty, you can deliver one of the most popular sessions at our events. But before reading...
DXWorldEXPO LLC announced today that "Miami Blockchain Event by FinTechEXPO" has announced that its Call for Papers is now open. The two-day event will present 20 top Blockchain experts. All speaking inquiries which covers the following information can be submitted by email to [email protected] Financial enterprises in New York City, London, Singapore, and other world financial capitals are embracing a new generation of smart, automated FinTech that eliminates many cumbersome, slow, and expe...
DXWordEXPO New York 2018, colocated with CloudEXPO New York 2018 will be held November 11-13, 2018, in New York City and will bring together Cloud Computing, FinTech and Blockchain, Digital Transformation, Big Data, Internet of Things, DevOps, AI, Machine Learning and WebRTC to one location.
As you move to the cloud, your network should be efficient, secure, and easy to manage. An enterprise adopting a hybrid or public cloud needs systems and tools that provide: Agility: ability to deliver applications and services faster, even in complex hybrid environments Easier manageability: enable reliable connectivity with complete oversight as the data center network evolves Greater efficiency: eliminate wasted effort while reducing errors and optimize asset utilization Security: implemen...
DXWorldEXPO LLC announced today that ICOHOLDER named "Media Sponsor" of Miami Blockchain Event by FinTechEXPO. ICOHOLDER give you detailed information and help the community to invest in the trusty projects. Miami Blockchain Event by FinTechEXPO has opened its Call for Papers. The two-day event will present 20 top Blockchain experts. All speaking inquiries which covers the following information can be submitted by email to [email protected] Miami Blockchain Event by FinTechEXPO also offers s...
DXWorldEXPO | CloudEXPO are the world's most influential, independent events where Cloud Computing was coined and where technology buyers and vendors meet to experience and discuss the big picture of Digital Transformation and all of the strategies, tactics, and tools they need to realize their goals. Sponsors of DXWorldEXPO | CloudEXPO benefit from unmatched branding, profile building and lead generation opportunities.
@DevOpsSummit New York 2018, colocated with CloudEXPO | DXWorldEXPO New York 2018 will be held November 11-13, 2018, in New York City. From showcase success stories from early adopters and web-scale businesses, DevOps is expanding to organizations of all sizes, including the world's largest enterprises - and delivering real results.
With tough new regulations coming to Europe on data privacy in May 2018, Calligo will explain why in reality the effect is global and transforms how you consider critical data. EU GDPR fundamentally rewrites the rules for cloud, Big Data and IoT. In his session at 21st Cloud Expo, Adam Ryan, Vice President and General Manager EMEA at Calligo, examined the regulations and provided insight on how it affects technology, challenges the established rules and will usher in new levels of diligence arou...
Dion Hinchcliffe is an internationally recognized digital expert, bestselling book author, frequent keynote speaker, analyst, futurist, and transformation expert based in Washington, DC. He is currently Chief Strategy Officer at the industry-leading digital strategy and online community solutions firm, 7Summits.
"We started a Master of Science in business analytics - that's the hot topic. We serve the business community around San Francisco so we educate the working professionals and this is where they all want to be," explained Judy Lee, Associate Professor and Department Chair at Golden Gate University, in this SYS-CON.tv interview at 21st Cloud Expo, held Oct 31 – Nov 2, 2017, at the Santa Clara Convention Center in Santa Clara, CA.