Welcome!

News Feed Item

Dystonia Europe and the European Parkinson's Disease Association (EPDA) Partner With Boston Scientific in Advancing Parkinson's and Dystonia Care

LONDON, February 24, 2014 /PRNewswire/ --

Dystonia Europe (DE) and the European Parkinson's Disease Association (EPDA) announced today that they are collaborating with Boston Scientific Corporation (NYSE:BSX), a global medical technology leader. The aim of these partnerships is to increase awareness, understanding of solutions and to take initiatives in the worldwide fight against Parkinson's disease and dystonia, two areas of high unmet need.

Both Parkinson's and dystonia are neurological diseases which include involuntary body movements such as tremors, sustained muscle contractions and abnormal twisting or postures, often referred to as motor symptoms. These symptoms can worsen over time due to the chronic and progressive nature of these conditions. For people living with Parkinson's or dystonia, they can be painful and interfere with managing daily living activities.

Parkinson's disease affects approximately 1.2 million Europeans and seven to ten million people worldwide.[1],[2] Parkinson's is the second most common neurodegenerative disease after Alzheimer's and is forecast to double by 2030 as the population ages.[3] In comparison, dystonia is the third most common movement disorder after Parkinson's disease and essential tremor[4]. It affects more than 500,000 people across Europe, including children and adults.[5]

"Ongoing educational efforts are needed to extend awareness of dystonia in Europe. We aim to connect people and organizations for dystonia to improve the quality of life for people living with dystonia, to stimulate research for more effective treatments and ultimately, to find a cure. We are partnering with leading companies in this field in achieving this goal and we are delighted about this partnership with Boston Scientific," said Robert Scholten, President of Dystonia Europe.

"In Europe alone, the facts about Parkinson's disease are startling. The tremendous economic and social burden will increase even more in the years to come, so we need to take action now to limit the impact on people with Parkinson's, their families, carers and society as a whole. At the EPDA, we realized that we can only make a difference and be successful if we collaborate and share knowledge, so we are looking forward to working with Boston Scientific," said Knut-Johan Onarheim, President of EPDA.

Under the terms of these equal partnerships, Dystonia Europe, the EPDA and Boston Scientific will work together on practical initiatives to improve Parkinson's and dystonia care in Europe. Boston Scientific is determined to innovate the treatment of both neurological disorders: Recently, the company developed a new deep brain stimulation system (DBS) called Vercise™. It is the first system designed to selectively stimulate targeted areas of the brain, which helps to customize therapy and manages symptoms of Parkinson's disease and dystonia syndromes.

"Neurological diseases are among the greatest healthcare challenges we currently face. At Boston Scientific, we are committed to improving how the diseases are managed today and developing innovative medical technologies that have a real impact on people's lives. We are very pleased that we have the opportunity to work together with such strong and valued partners to advance dystonia and Parkinson's care in Europe," said Maulik Nanavaty, Senior Vice President and President of Neuromodulation at Boston Scientific.

Dystonia Europe - Connecting People for Dystonia

Dystonia Europe is the platform at the European level for all dystonia stakeholders in Europe.

DE works in partnership with patient advocacy groups, clinicians, researchers, healthcare professionals, and the pharmaceutical and medical device industry. By connecting people across Europe, DE aims to raise awareness, spread information and promote research within the field of dystonia. For more information please visit http://dystonia-europe.org  

About EPDA

The European Parkinson's Disease Association (EPDA) is the only European Parkinson's disease umbrella organisation. Founded in 1992, EPDA is a non-profit organisation advocating for the rights and needs of those living with Parkinson's and their caregivers.

For more information please visit http://www.epda.eu.com/en

About Boston Scientific

Boston Scientific transforms lives through innovative medical solutions that improve the health of patients around the world. As a global medical technology leader for more than 30 years, we advance science for life by providing a broad range of high performance solutions that address unmet patient needs and reduce the cost of healthcare. For more information, visit http://www.bostonscientific.com and connect on Twitter and Facebook.

CONTACTS

Dystonia Europe
Robert Scholten, President
[email protected]  


EPDA
Dominic Graham, Head of Editorial and Brand Communications
[email protected]


Boston Scientific Corporation
Simonetta Balbi, PR and Corporate Communication Europe
+39-3387936422 (mobile)
+39-0106060281 (direct)
[email protected]

REFERENCES

1. European Parkinson's Disease Association 2013. http://www.epda.eu.com/en/about-the-epda/ [http://www.epda.eu.com/en/about-the-epda ]  Date accessed 4 December 2013.

2. Parkinson's Disease Foundation 2012. http://www.pdf.org/en/parkinson_statistics  Date accessed 12 November 2013.

3. European Parkinson's Disease Association 2013. http://www.epda.eu.com/en/about-the-epda/ [http://www.epda.eu.com/en/about-the-epda ] Date accessed 4 December 2013.

4. Dystonia Europe. Dystonia. http://dystonia-europe.org/about-dystonia/dystonia/ [http://dystonia-europe.org/about-dystonia/dystonia ]  Date accessed 14 November 2013.

5. Epidemiology study of dystonia in Europe (ESDE) Collaborative Group. A prevalence study of primary dystonia in eight European countries. J. Neurology. 2000. 247:787-792.

More Stories By PR Newswire

Copyright © 2007 PR Newswire. All rights reserved. Republication or redistribution of PRNewswire content is expressly prohibited without the prior written consent of PRNewswire. PRNewswire shall not be liable for any errors or delays in the content, or for any actions taken in reliance thereon.

Latest Stories
The many IoT deployments around the world are busy integrating smart devices and sensors into their enterprise IT infrastructures. Yet all of this technology – and there are an amazing number of choices – is of no use without the software to gather, communicate, and analyze the new data flows. Without software, there is no IT. In this power panel at @ThingsExpo, moderated by Conference Chair Roger Strukhoff, Dave McCarthy, Director of Products at Bsquare Corporation; Alan Williamson, Principal...
Businesses and business units of all sizes can benefit from cloud computing, but many don't want the cost, performance and security concerns of public cloud nor the complexity of building their own private clouds. Today, some cloud vendors are using artificial intelligence (AI) to simplify cloud deployment and management. In his session at 20th Cloud Expo, Ajay Gulati, Co-founder and CEO of ZeroStack, will discuss how AI can simplify cloud operations. He will cover the following topics: why clou...
Video experiences should be unique and exciting! But that doesn’t mean you need to patch all the pieces yourself. Users demand rich and engaging experiences and new ways to connect with you. But creating robust video applications at scale can be complicated, time-consuming and expensive. In his session at @ThingsExpo, Zohar Babin, Vice President of Platform, Ecosystem and Community at Kaltura, discussed how VPaaS enables you to move fast, creating scalable video experiences that reach your aud...
Cloud Expo, Inc. has announced today that Andi Mann returns to 'DevOps at Cloud Expo 2017' as Conference Chair The @DevOpsSummit at Cloud Expo will take place on June 6-8, 2017, at the Javits Center in New York City, NY. "DevOps is set to be one of the most profound disruptions to hit IT in decades," said Andi Mann. "It is a natural extension of cloud computing, and I have seen both firsthand and in independent research the fantastic results DevOps delivers. So I am excited to help the great t...
Rapid innovation, changing business landscapes, and new IT demands force businesses to make changes quickly. In the eyes of many, containers are at the brink of becoming a pervasive technology in enterprise IT to accelerate application delivery. In this presentation, attendees learned about the: The transformation of IT to a DevOps, microservices, and container-based architecture What are containers and how DevOps practices can operate in a container-based environment A demonstration of how ...
WebRTC is the future of browser-to-browser communications, and continues to make inroads into the traditional, difficult, plug-in web communications world. The 6th WebRTC Summit continues our tradition of delivering the latest and greatest presentations within the world of WebRTC. Topics include voice calling, video chat, P2P file sharing, and use cases that have already leveraged the power and convenience of WebRTC.
"At ROHA we develop an app called Catcha. It was developed after we spent a year meeting with, talking to, interacting with senior citizens watching them use their smartphones and talking to them about how they use their smartphones so we could get to know their smartphone behavior," explained Dave Woods, Chief Innovation Officer at ROHA, in this SYS-CON.tv interview at 19th Cloud Expo, held November 1-3, 2016, at the Santa Clara Convention Center in Santa Clara, CA.
In this strange new world where more and more power is drawn from business technology, companies are effectively straddling two paths on the road to innovation and transformation into digital enterprises. The first path is the heritage trail – with “legacy” technology forming the background. Here, extant technologies are transformed by core IT teams to provide more API-driven approaches. Legacy systems can restrict companies that are transitioning into digital enterprises. To truly become a lead...
Without lifecycle traceability and visibility across the tool chain, stakeholders from Planning-to-Ops have limited insight and answers to who, what, when, why and how across the DevOps lifecycle. This impacts the ability to deliver high quality software at the needed velocity to drive positive business outcomes. In his general session at @DevOpsSummit at 19th Cloud Expo, Phil Hombledal, Solution Architect at CollabNet, discussed how customers are able to achieve a level of transparency that e...
"Venafi has a platform that allows you to manage, centralize and automate the complete life cycle of keys and certificates within the organization," explained Gina Osmond, Sr. Field Marketing Manager at Venafi, in this SYS-CON.tv interview at DevOps at 19th Cloud Expo, held November 1-3, 2016, at the Santa Clara Convention Center in Santa Clara, CA.
In his keynote at 18th Cloud Expo, Andrew Keys, Co-Founder of ConsenSys Enterprise, provided an overview of the evolution of the Internet and the Database and the future of their combination – the Blockchain. Andrew Keys is Co-Founder of ConsenSys Enterprise. He comes to ConsenSys Enterprise with capital markets, technology and entrepreneurial experience. Previously, he worked for UBS investment bank in equities analysis. Later, he was responsible for the creation and distribution of life sett...
Get deep visibility into the performance of your databases and expert advice for performance optimization and tuning. You can't get application performance without database performance. Give everyone on the team a comprehensive view of how every aspect of the system affects performance across SQL database operations, host server and OS, virtualization resources and storage I/O. Quickly find bottlenecks and troubleshoot complex problems.
20th Cloud Expo, taking place June 6-8, 2017, at the Javits Center in New York City, NY, will feature technical sessions from a rock star conference faculty and the leading industry players in the world. Cloud computing is now being embraced by a majority of enterprises of all sizes. Yesterday's debate about public vs. private has transformed into the reality of hybrid cloud: a recent survey shows that 74% of enterprises have a hybrid cloud strategy.
Application transformation and DevOps practices are two sides of the same coin. Enterprises that want to capture value faster, need to deliver value faster – time value of money principle. To do that enterprises need to build cloud-native apps as microservices by empowering teams to build, ship, and run in production. In his session at @DevOpsSummit at 19th Cloud Expo, Neil Gehani, senior product manager at HPE, discussed what every business should plan for how to structure their teams to delive...
"We analyze the video streaming experience. We are gathering the user behavior in real time from the user devices and we analyze how users experience the video streaming," explained Eric Kim, Founder and CEO at Streamlyzer, in this SYS-CON.tv interview at 19th Cloud Expo, held November 1-3, 2016, at the Santa Clara Convention Center in Santa Clara, CA.