Welcome!

News Feed Item

21st Century National Pain Registry Could Change Culture and Practice of Pain Management

PHOENIX, March 11, 2014 /PRNewswire-USNewswire/ -- Based on early testing, the future looks bright for the creation of a technologically advanced national registry to collect data on the experience of pain sufferers and their responses to treatment, according to Stanford scientists who presented data at the 30th Annual Meeting of the American Academy of Pain Medicine (AAPM).

In a scientific session on Friday, Sean Mackey, MD, PhD, president of AAPM, explained how the Health Electronic Registry of Outcomes (HERO) system is designed to capture detailed, longitudinal patient-reported outcomes on physical, psychological and social health. The HERO system uses sophisticated algorithms to quickly assess a patient's condition and assign values to the individual contributors of pain. The system is designed around the knowledge that many factors contribute to an accurate pain assessment.  Some of those factors include pain intensity, how much pain interferes with activities, physical function, fatigue, sleep, mood and others.  The value to the pain practice and pain patient is dramatic, said Dr. Mackey, who is chief of the Pain Medicine Division at Stanford University School of Medicine in Palo Alto, Calif (http://snapl.stanford.edu.)

"We expect this work will ultimately help clinicians target tailored treatments to a specific patient," Dr. Mackey said.  "And we hope this work will help persons suffering from pain get the right treatment that is safe and effective for them to ultimately improve their quality of life."  

The work on HERO began with both philanthropic funding (Redlich Pain Research Endowment) to Dr. Mackey as well as a grant from the National Institutes for Health (NIH) Pain Consortium to Dr. Mackey and the Stanford Center for Clinical Informatics (SCCI). The goal has been to develop an open source health registry available on a national scale. "This is a perfect example of a public-private partnership that is working," Dr. Mackey said. "We are using both NIH resources as well as our own to develop a flexible system that will be freely available and usable for multiple pain and other medical conditions."  In late 2012, the Stanford Pain Management Center rolled out HERO and now has data on approximately 3,200 unique patients with over 8,000 longitudinal data assessments. Ming-Chih Kao, MD, PhD, assistant professor in the Stanford Pain Medicine Division, demonstrated several examples of how HERO has helped improve the quality of life for patients suffering with chronic pain as well as served as a platform to answer important pain research questions.

The need to improve patient outcome registries is one of the goals set by the Institute of Medicine in its 2011 report Relieving Pain in America: A Blueprint for Transforming Prevention, Care, Education, and Research. The IOM report documented more than 100 million Americans who suffer chronic pain at costs in medical expenses and lost productivity that reach up to $635 billion a year. To address IOM requirements, Dr. Mackey said, HERO is able to:

  • Support assessment of patients and treatment decision making at the point of care
  • Provide for the aggregation of large numbers of patients
  • Enable the assessment of the safety and effectiveness of therapies
  • Create "learning systems" that would provide clinicians with ongoing information about treatment success or failure

The idea is to remove technological barriers to collecting assessment and treatment data locally that can be rapidly aggregated and harmonized nationally, Dr. Mackey explained.

A frequent question that arises is why not use currently existing electronic medical records (EMRs)? The answer, Dr. Mackey said, is that current EMRs are not adequate to the complexity and demands of modern patient-reported outcomes. "Limiting our infrastructure to static or traditional forms would be like building a word processor that uses only the Courier New font," he said.

A key component of HERO is the NIH-funded PROMIS system, which stands for Patient Reported Outcome Measurement Information System. The NIH has invested more $100 million in developing the dynamic system of health-related measures since the project's inception in 2003, said Karon F. Cook, PhD, of the Feinberg School of Medicine, Northwestern University, Chicago, Ill., who also spoke to AAPM attendees.

In addition to Stanford and the NIH, the project's other collaborators include the University of Florida where testing is under way to integrate the new database with the current system of electronic medical records. 

About AAPM
The American Academy of Pain Medicine is the premier medical association for pain physicians and their treatment teams with over 2,500 members. Now in its 31st year of service, the Academy's mission is to optimize the health of patients in pain and eliminate pain as a major public health problem by advancing the practice and specialty of pain medicine through education, training, advocacy and research. Information is available on the Academy's website at www.painmed.org.

SOURCE American Academy of Pain Medicine

More Stories By PR Newswire

Copyright © 2007 PR Newswire. All rights reserved. Republication or redistribution of PRNewswire content is expressly prohibited without the prior written consent of PRNewswire. PRNewswire shall not be liable for any errors or delays in the content, or for any actions taken in reliance thereon.

Latest Stories
All organizations that did not originate this moment have a pre-existing culture as well as legacy technology and processes that can be more or less amenable to DevOps implementation. That organizational culture is influenced by the personalities and management styles of Executive Management, the wider culture in which the organization is situated, and the personalities of key team members at all levels of the organization. This culture and entrenched interests usually throw a wrench in the work...
Dion Hinchcliffe is an internationally recognized digital expert, bestselling book author, frequent keynote speaker, analyst, futurist, and transformation expert based in Washington, DC. He is currently Chief Strategy Officer at the industry-leading digital strategy and online community solutions firm, 7Summits.
Bill Schmarzo, author of "Big Data: Understanding How Data Powers Big Business" and "Big Data MBA: Driving Business Strategies with Data Science," is responsible for setting the strategy and defining the Big Data service offerings and capabilities for EMC Global Services Big Data Practice. As the CTO for the Big Data Practice, he is responsible for working with organizations to help them identify where and how to start their big data journeys. He's written several white papers, is an avid blogge...
DXWorldEXPO LLC announced today that Dez Blanchfield joined the faculty of CloudEXPO's "10-Year Anniversary Event" which will take place on November 11-13, 2018 in New York City. Dez is a strategic leader in business and digital transformation with 25 years of experience in the IT and telecommunications industries developing strategies and implementing business initiatives. He has a breadth of expertise spanning technologies such as cloud computing, big data and analytics, cognitive computing, m...
22nd International Cloud Expo, taking place June 5-7, 2018, at the Javits Center in New York City, NY, and co-located with the 1st DXWorld Expo will feature technical sessions from a rock star conference faculty and the leading industry players in the world. Cloud computing is now being embraced by a majority of enterprises of all sizes. Yesterday's debate about public vs. private has transformed into the reality of hybrid cloud: a recent survey shows that 74% of enterprises have a hybrid cloud ...
As DevOps methodologies expand their reach across the enterprise, organizations face the daunting challenge of adapting related cloud strategies to ensure optimal alignment, from managing complexity to ensuring proper governance. How can culture, automation, legacy apps and even budget be reexamined to enable this ongoing shift within the modern software factory?
Bill Schmarzo, author of "Big Data: Understanding How Data Powers Big Business" and "Big Data MBA: Driving Business Strategies with Data Science," is responsible for setting the strategy and defining the Big Data service offerings and capabilities for EMC Global Services Big Data Practice. As the CTO for the Big Data Practice, he is responsible for working with organizations to help them identify where and how to start their big data journeys. He's written several white papers, is an avid blogge...
In past @ThingsExpo presentations, Joseph di Paolantonio has explored how various Internet of Things (IoT) and data management and analytics (DMA) solution spaces will come together as sensor analytics ecosystems. This year, in his session at @ThingsExpo, Joseph di Paolantonio from DataArchon, added the numerous Transportation areas, from autonomous vehicles to “Uber for containers.” While IoT data in any one area of Transportation will have a huge impact in that area, combining sensor analytic...
Charles Araujo is an industry analyst, internationally recognized authority on the Digital Enterprise and author of The Quantum Age of IT: Why Everything You Know About IT is About to Change. As Principal Analyst with Intellyx, he writes, speaks and advises organizations on how to navigate through this time of disruption. He is also the founder of The Institute for Digital Transformation and a sought after keynote speaker. He has been a regular contributor to both InformationWeek and CIO Insight...
Michael Maximilien, better known as max or Dr. Max, is a computer scientist with IBM. At IBM Research Triangle Park, he was a principal engineer for the worldwide industry point-of-sale standard: JavaPOS. At IBM Research, some highlights include pioneering research on semantic Web services, mashups, and cloud computing, and platform-as-a-service. He joined the IBM Cloud Labs in 2014 and works closely with Pivotal Inc., to help make the Cloud Found the best PaaS.
It is of utmost importance for the future success of WebRTC to ensure that interoperability is operational between web browsers and any WebRTC-compliant client. To be guaranteed as operational and effective, interoperability must be tested extensively by establishing WebRTC data and media connections between different web browsers running on different devices and operating systems. In his session at WebRTC Summit at @ThingsExpo, Dr. Alex Gouaillard, CEO and Founder of CoSMo Software, presented ...
@DevOpsSummit at Cloud Expo, taking place November 12-13 in New York City, NY, is co-located with 22nd international CloudEXPO | first international DXWorldEXPO and will feature technical sessions from a rock star conference faculty and the leading industry players in the world.
In a world where the internet rules all, where 94% of business buyers conduct online research, and where e-commerce sales are poised to fall between $427 billion and $443 billion by the end of this year, we think it's safe to say that your website is a vital part of your business strategy. Whether you're a B2B company, a local business, or an e-commerce site, digital presence is key to maintain in your drive towards success. Digital Performance will take priority in 2018 for the following reason...
One of the biggest challenges with adopting a DevOps mentality is: new applications are easily adapted to cloud-native, microservice-based, or containerized architectures - they can be built for them - but old applications need complex refactoring. On the other hand, these new technologies can require relearning or adapting new, oftentimes more complex, methodologies and tools to be ready for production. In his general session at @DevOpsSummit at 20th Cloud Expo, Chris Brown, Solutions Marketi...
At the keynote this morning we spoke about the value proposition of Nutanix, of having a DevOps culture and a mindset, and the business outcomes of achieving agility and scale, which everybody here is trying to accomplish," noted Mark Lavi, DevOps Solution Architect at Nutanix, in this SYS-CON.tv interview at @DevOpsSummit at 20th Cloud Expo, held June 6-8, 2017, at the Javits Center in New York City, NY.