Welcome!

News Feed Item

Parkinson's Disease Foundation Announces $30,000 in Grant Funding to Study Fatigue and Gastrointestinal Dysfunction

Research Areas Chosen by People with Parkinson's through PDF Community Choice Research Awards

NEW YORK, March 13, 2014 /PRNewswire-USNewswire/ -- The Parkinson's Disease Foundation® (PDF®) is pleased to announce $30,000 in funding to address two disabling, yet under-recognized symptoms of Parkinson's disease – fatigue and gastrointestinal dysfunction – through its first Community Choice Research Awards.  The patient community identified these two areas as priorities for scientific research through an online survey administered in 2013, the results of which were reviewed by PDF's scientific advisory board.

Parkinson's Disease Foundation logo.

"It is exciting to see patients, such as myself, play a pivotal role in the choice of research priorities through the PDF Community Choice Research Award," said Diane Cook, member of PDF's People with Parkinson's Advisory Council and board member of ProjectSpark, which is partnering with PDF to launch the award. "The results demonstrate exactly why patient input is needed – because people with Parkinson's understand more than anyone that the 'invisible' symptoms such as fatigue and gastrointestinal dysfunction, are the ones for which we need better treatments."

It is estimated that more than 50 percent of people with Parkinson's disease will suffer from fatigue.  Many people with Parkinson's disease identify fatigue as more disabling than the movement symptoms of Parkinson's, such as tremor and stiffness.  Similarly, up to 80 percent of people with Parkinson's disease experience issues with their gastrointestinal system, such as bowel dysfunction and constipation. Yet, very few treatments exist to treat either symptom.

To address these under-recognized symptoms, PDF is gathering leaders in the field of Parkinson's disease as well as specialists from related areas, such as gastroenterology and exercise physiology, to assess where we are in understanding and treating these symptoms, and what needs to be done to move the field forward.  The first, focused on fatigue, will be led by Joseph Friedman, M.D., professor of neurology in the Alpert Medical School at Brown University in Providence, RI, and the second on gastrointestinal function will be jointly led by Ronald Pfeiffer, M.D., professor and Vice Chair of the Department of Neurology at the University of Tennessee Health Science Center in Memphis, TN, and Eamonn Quigley, M.D., a gastroenterologist and Medical Director of The Lynda K. and David M. Underwood Center for Digestive Disorders at Houston Methodist Hospital in Houston, TX.  Each meeting will involve the person with Parkinson's who first recommended the topic as well as a PDF Research Advocate. Results and recommendations are expected in fall 2014.

"The results from the first Community Choice Research Award reinforce PDF's philosophy that people with Parkinson's disease need to have a voice in the research process," said James Beck, Ph.D., Vice President, Scientific Affairs at PDF.  "The insights the community provided through PDF's survey are helping to put a spotlight on unmet needs, allowing us to focus on ways to not only provide help today, but also speed treatments for tomorrow."

Learn more about the PDF Community Choice Research Award by visiting www.pdf.org/communitychoice or by calling (800) 457-6676.

PDF thanks the ProjectSpark Foundation for their support and partnership on this initiative. 

About Parkinson's Disease 
Parkinson's disease is a progressive neurological disorder that affects nearly one million people in the United States and seven to 10 million people worldwide.  Although promising research is being conducted, there is currently no cure for Parkinson's disease.

About PDF Research 
Central to the mission of the Parkinson's Disease Foundation (PDF) is our commitment to funding research that is focused on three results: solving, treating and ending Parkinson's disease.  In the calendar year 2014, PDF will contribute a total of $5 million towards Parkinson's disease research programs, funding three research centers, 40 scientific projects and 10 clinical fellows around the world.  A full list of this year's research projects is available on the PDF website at www.pdf.org/results_funded.    

About the ProjectSpark Foundation®
The Project Spark Foundation® seeks to complement the efforts of other institutions focused on Parkinson's disease by finding points of leverage where a "spark" can ignite the actions needed to move forward.  Based on a belief that creative thinking and effective outreach will help to make a difference, ProjectSpark supports innovative solutions, creative opportunities and collaborative ventures.

About the Parkinson's Disease Foundation (PDF)
The Parkinson's Disease Foundation® (PDF®) is a leading national presence in Parkinson's disease research, education and public advocacy.  We are working for the nearly one million people in the US who live with Parkinson's disease by funding promising scientific research while supporting people living with Parkinson's disease through educational programs and services.  Since its founding in 1957, PDF has dedicated over $100 million to fund the work of leading scientists throughout the world and over $42 million to support national education and advocacy programs.

Logo - http://photos.prnewswire.com/prnh/20111101/DC97663LOGO

SOURCE Parkinson's Disease Foundation

More Stories By PR Newswire

Copyright © 2007 PR Newswire. All rights reserved. Republication or redistribution of PRNewswire content is expressly prohibited without the prior written consent of PRNewswire. PRNewswire shall not be liable for any errors or delays in the content, or for any actions taken in reliance thereon.

Latest Stories
We’ve worked with dozens of early adopters across numerous industries and will debunk common misperceptions, which starts with understanding that many of the connected products we’ll use over the next 5 years are already products, they’re just not yet connected. With an IoT product, time-in-market provides much more essential feedback than ever before. Innovation comes from what you do with the data that the connected product provides in order to enhance the customer experience and optimize busi...
The IETF draft standard for M2M certificates is a security solution specifically designed for the demanding needs of IoT/M2M applications. In his session at @ThingsExpo, Brian Romansky, VP of Strategic Technology at TrustPoint Innovation, will explain how M2M certificates can efficiently enable confidentiality, integrity, and authenticity on highly constrained devices.
The paradigm has shifted. A Gartner survey shows that 43% of organizations are using or plan to implement the Internet of Things in 2016. However, not just a handful of companies are still using the old-style ad-hoc trial-and-error ways, unaware of the critical barriers, paint points, traps, and hidden roadblocks. How can you become a winner? In his session at @ThingsExpo, Tony Shan will present a methodical approach to guide the holistic adoption and enablement of IoT implementations. This ov...
In his session at 18th Cloud Expo, Sagi Brody, Chief Technology Officer at Webair Internet Development Inc., will focus on real world deployments of DDoS mitigation strategies in every layer of the network. He will give an overview of methods to prevent these attacks and best practices on how to provide protection in complex cloud platforms. He will also outline what we have found in our experience managing and running thousands of Linux and Unix managed service platforms and what specifically c...
Artificial Intelligence has the potential to massively disrupt IoT. In his session at 18th Cloud Expo, AJ Abdallat, CEO of Beyond AI, will discuss what the five main drivers are in Artificial Intelligence that could shape the future of the Internet of Things. AJ Abdallat is CEO of Beyond AI. He has over 20 years of management experience in the fields of artificial intelligence, sensors, instruments, devices and software for telecommunications, life sciences, environmental monitoring, process...
In the world of DevOps there are ‘known good practices’ – aka ‘patterns’ – and ‘known bad practices’ – aka ‘anti-patterns.' Many of these patterns and anti-patterns have been developed from real world experience, especially by the early adopters of DevOps theory; but many are more feasible in theory than in practice, especially for more recent entrants to the DevOps scene. In this power panel at @DevOpsSummit at 18th Cloud Expo, moderated by DevOps Conference Chair Andi Mann, panelists will dis...
SYS-CON Events announced today that Peak 10, Inc., a national IT infrastructure and cloud services provider, will exhibit at SYS-CON's 18th International Cloud Expo®, which will take place on June 7-9, 2016, at the Javits Center in New York City, NY. Peak 10 provides reliable, tailored data center and network services, cloud and managed services. Its solutions are designed to scale and adapt to customers’ changing business needs, enabling them to lower costs, improve performance and focus inter...
SYS-CON Events announced today that Stratoscale, the software company developing the next generation data center operating system, will exhibit at SYS-CON's 18th International Cloud Expo®, which will take place on June 7-9, 2016, at the Javits Center in New York City, NY. Stratoscale is revolutionizing the data center with a zero-to-cloud-in-minutes solution. With Stratoscale’s hardware-agnostic, Software Defined Data Center (SDDC) solution to store everything, run anything and scale everywhere...
SYS-CON Events announced today that Ericsson has been named “Gold Sponsor” of SYS-CON's @ThingsExpo, which will take place on June 7-9, 2016, at the Javits Center in New York, New York. Ericsson is a world leader in the rapidly changing environment of communications technology – providing equipment, software and services to enable transformation through mobility. Some 40 percent of global mobile traffic runs through networks we have supplied. More than 1 billion subscribers around the world re...
Angular 2 is a complete re-write of the popular framework AngularJS. Programming in Angular 2 is greatly simplified – now it's a component-based well-performing framework. This immersive one-day workshop at 18th Cloud Expo, led by Yakov Fain, a Java Champion and a co-founder of the IT consultancy Farata Systems and the product company SuranceBay, will provide you with everything you wanted to know about Angular 2.
SYS-CON Events announced today that Men & Mice, the leading global provider of DNS, DHCP and IP address management overlay solutions, will exhibit at SYS-CON's 18th International Cloud Expo®, which will take place on June 7-9, 2016, at the Javits Center in New York City, NY. The Men & Mice Suite overlay solution is already known for its powerful application in heterogeneous operating environments, enabling enterprises to scale without fuss. Building on a solid range of diverse platform support,...
In his session at @ThingsExpo, Chris Klein, CEO and Co-founder of Rachio, will discuss next generation communities that are using IoT to create more sustainable, intelligent communities. One example is Sterling Ranch, a 10,000 home development that – with the help of Siemens – will integrate IoT technology into the community to provide residents with energy and water savings as well as intelligent security. Everything from stop lights to sprinkler systems to building infrastructures will run ef...
You deployed your app with the Bluemix PaaS and it's gaining some serious traction, so it's time to make some tweaks. Did you design your application in a way that it can scale in the cloud? Were you even thinking about the cloud when you built the app? If not, chances are your app is going to break. Check out this webcast to learn various techniques for designing applications that will scale successfully in Bluemix, for the confidence you need to take your apps to the next level and beyond.
Unless you don’t use the internet, don’t live in California, or haven’t been paying attention to the recent news… you should be aware that self-driving cars are on their way to becoming a reality. I have seen them – they are real. If you believe in the future reality of self-driving cars, then continue reading on. If you don’t believe in the future possibilities, then I am not sure what to do to convince you other than discuss the very real changes that will roll out with the consumer producti...
Manufacturers are embracing the Industrial Internet the same way consumers are leveraging Fitbits – to improve overall health and wellness. Both can provide consistent measurement, visibility, and suggest performance improvements customized to help reach goals. Fitbit users can view real-time data and make adjustments to increase their activity. In his session at @ThingsExpo, Mark Bernardo Professional Services Leader, Americas, at GE Digital, will discuss how leveraging the Industrial Interne...