|By PR Newswire||
|March 13, 2014 03:01 PM EDT||
NEW YORK, March 13, 2014 /PRNewswire-USNewswire/ -- The Parkinson's Disease Foundation® (PDF®) is pleased to announce $30,000 in funding to address two disabling, yet under-recognized symptoms of Parkinson's disease – fatigue and gastrointestinal dysfunction – through its first Community Choice Research Awards. The patient community identified these two areas as priorities for scientific research through an online survey administered in 2013, the results of which were reviewed by PDF's scientific advisory board.
"It is exciting to see patients, such as myself, play a pivotal role in the choice of research priorities through the PDF Community Choice Research Award," said Diane Cook, member of PDF's People with Parkinson's Advisory Council and board member of ProjectSpark, which is partnering with PDF to launch the award. "The results demonstrate exactly why patient input is needed – because people with Parkinson's understand more than anyone that the 'invisible' symptoms such as fatigue and gastrointestinal dysfunction, are the ones for which we need better treatments."
It is estimated that more than 50 percent of people with Parkinson's disease will suffer from fatigue. Many people with Parkinson's disease identify fatigue as more disabling than the movement symptoms of Parkinson's, such as tremor and stiffness. Similarly, up to 80 percent of people with Parkinson's disease experience issues with their gastrointestinal system, such as bowel dysfunction and constipation. Yet, very few treatments exist to treat either symptom.
To address these under-recognized symptoms, PDF is gathering leaders in the field of Parkinson's disease as well as specialists from related areas, such as gastroenterology and exercise physiology, to assess where we are in understanding and treating these symptoms, and what needs to be done to move the field forward. The first, focused on fatigue, will be led by Joseph Friedman, M.D., professor of neurology in the Alpert Medical School at Brown University in Providence, RI, and the second on gastrointestinal function will be jointly led by Ronald Pfeiffer, M.D., professor and Vice Chair of the Department of Neurology at the University of Tennessee Health Science Center in Memphis, TN, and Eamonn Quigley, M.D., a gastroenterologist and Medical Director of The Lynda K. and David M. Underwood Center for Digestive Disorders at Houston Methodist Hospital in Houston, TX. Each meeting will involve the person with Parkinson's who first recommended the topic as well as a PDF Research Advocate. Results and recommendations are expected in fall 2014.
"The results from the first Community Choice Research Award reinforce PDF's philosophy that people with Parkinson's disease need to have a voice in the research process," said James Beck, Ph.D., Vice President, Scientific Affairs at PDF. "The insights the community provided through PDF's survey are helping to put a spotlight on unmet needs, allowing us to focus on ways to not only provide help today, but also speed treatments for tomorrow."
Learn more about the PDF Community Choice Research Award by visiting www.pdf.org/communitychoice or by calling (800) 457-6676.
PDF thanks the ProjectSpark Foundation for their support and partnership on this initiative.
About Parkinson's Disease
Parkinson's disease is a progressive neurological disorder that affects nearly one million people in the United States and seven to 10 million people worldwide. Although promising research is being conducted, there is currently no cure for Parkinson's disease.
About PDF Research
Central to the mission of the Parkinson's Disease Foundation (PDF) is our commitment to funding research that is focused on three results: solving, treating and ending Parkinson's disease. In the calendar year 2014, PDF will contribute a total of $5 million towards Parkinson's disease research programs, funding three research centers, 40 scientific projects and 10 clinical fellows around the world. A full list of this year's research projects is available on the PDF website at www.pdf.org/results_funded.
About the ProjectSpark Foundation®
The Project Spark Foundation® seeks to complement the efforts of other institutions focused on Parkinson's disease by finding points of leverage where a "spark" can ignite the actions needed to move forward. Based on a belief that creative thinking and effective outreach will help to make a difference, ProjectSpark supports innovative solutions, creative opportunities and collaborative ventures.
About the Parkinson's Disease Foundation (PDF)
The Parkinson's Disease Foundation® (PDF®) is a leading national presence in Parkinson's disease research, education and public advocacy. We are working for the nearly one million people in the US who live with Parkinson's disease by funding promising scientific research while supporting people living with Parkinson's disease through educational programs and services. Since its founding in 1957, PDF has dedicated over $100 million to fund the work of leading scientists throughout the world and over $42 million to support national education and advocacy programs.
SOURCE Parkinson's Disease Foundation
SYS-CON Events announced today that VividCortex, the monitoring solution for the modern data system, will exhibit at the 17th International Cloud Expo®, which will take place on November 3–5, 2015, at the Santa Clara Convention Center in Santa Clara, CA. The database is the heart of most applications, but it’s also the part that’s hardest to scale, monitor, and optimize even as it’s growing 50% year over year. VividCortex is the first unified suite of database monitoring tools specifically desi...
Aug. 4, 2015 12:00 PM EDT Reads: 108
Graylog, Inc., has added the capability to collect, centralize and analyze application container logs from within Docker. The Graylog logging driver for Docker addresses the challenges of extracting intelligence from within Docker containers, where most workloads are dynamic and log data is not persisted or stored. Using Graylog, DevOps and IT Ops teams can pinpoint the root cause of problems to deliver new applications faster and minimize downtime.
Aug. 4, 2015 11:45 AM EDT
As Marc Andreessen says software is eating the world. Everything is rapidly moving toward being software-defined – from our phones and cars through our washing machines to the datacenter. However, there are larger challenges when implementing software defined on a larger scale - when building software defined infrastructure. In his session at 16th Cloud Expo, Boyan Ivanov, CEO of StorPool, provided some practical insights on what, how and why when implementing "software-defined" in the datacent...
Aug. 4, 2015 11:30 AM EDT Reads: 109
Between the compelling mockups and specs produced by your analysts and designers, and the resulting application built by your developers, there is a gulf where projects fail, costs spiral out of control, and applications fall short of requirements. In his session at @DevOpsSummit, Charles Kendrick, CTO and Chief Architect at Isomorphic Software, presented a new approach where business and development users collaborate – each using tools appropriate to their goals and expertise – to build mocku...
Aug. 4, 2015 11:29 AM EDT
Learn how you can use the CoSN SEND II Decision Tree for Education Technology to make sure that your K–12 technology initiatives create a more engaging learning experience that empowers students, teachers, and administrators alike.
Aug. 4, 2015 09:30 AM EDT Reads: 108
Mobile, social, Big Data, and cloud have fundamentally changed the way we live. “Anytime, anywhere” access to data and information is no longer a luxury; it’s a requirement, in both our personal and professional lives. For IT organizations, this means pressure has never been greater to deliver meaningful services to the business and customers.
Aug. 4, 2015 08:45 AM EDT Reads: 255
In a recent research, analyst firm IDC found that the average cost of a critical application failure is $500,000 to $1 million per hour and the average total cost of unplanned application downtime is $1.25 billion to $2.5 billion per year for Fortune 1000 companies. In addition to the findings on the cost of the downtime, the research also highlighted best practices for development, testing, application support, infrastructure, and operations teams.
Aug. 4, 2015 07:00 AM EDT Reads: 223
"We've just seen a huge influx of new partners coming into our ecosystem, and partners building unique offerings on top of our API set," explained Seth Bostock, Chief Executive Officer at IndependenceIT, in this SYS-CON.tv interview at 16th Cloud Expo, held June 9-11, 2015, at the Javits Center in New York City.
Aug. 3, 2015 11:00 PM EDT Reads: 698
SYS-CON Events announced today that HPM Networks will exhibit at the 17th International Cloud Expo®, which will take place on November 3–5, 2015, at the Santa Clara Convention Center in Santa Clara, CA. For 20 years, HPM Networks has been integrating technology solutions that solve complex business challenges. HPM Networks has designed solutions for both SMB and enterprise customers throughout the San Francisco Bay Area.
Aug. 3, 2015 06:45 PM EDT Reads: 542
Container technology is sending shock waves through the world of cloud computing. Heralded as the 'next big thing,' containers provide software owners a consistent way to package their software and dependencies while infrastructure operators benefit from a standard way to deploy and run them. Containers present new challenges for tracking usage due to their dynamic nature. They can also be deployed to bare metal, virtual machines and various cloud platforms. How do software owners track the usag...
Aug. 3, 2015 04:00 PM EDT Reads: 284
As organizations shift towards IT-as-a-service models, the need for managing and protecting data residing across physical, virtual, and now cloud environments grows with it. CommVault can ensure protection and E-Discovery of your data – whether in a private cloud, a Service Provider delivered public cloud, or a hybrid cloud environment – across the heterogeneous enterprise. In his session at 17th Cloud Expo, Randy De Meno, Chief Technologist - Windows Products and Microsoft Partnerships at Com...
Aug. 3, 2015 03:30 PM EDT
The Software Defined Data Center (SDDC), which enables organizations to seamlessly run in a hybrid cloud model (public + private cloud), is here to stay. IDC estimates that the software-defined networking market will be valued at $3.7 billion by 2016. Security is a key component and benefit of the SDDC, and offers an opportunity to build security 'from the ground up' and weave it into the environment from day one. In his session at 16th Cloud Expo, Reuven Harrison, CTO and Co-Founder of Tufin,...
Aug. 3, 2015 03:00 PM EDT Reads: 567
In their session at 17th Cloud Expo, Hal Schwartz, CEO of Secure Infrastructure & Services (SIAS), and Chuck Paolillo, CTO of Secure Infrastructure & Services (SIAS), provide a study of cloud adoption trends and the power and flexibility of IBM Power and Pureflex cloud solutions. In his role as CEO of Secure Infrastructure & Services (SIAS), Hal Schwartz provides leadership and direction for the company.
Aug. 3, 2015 12:30 PM EDT Reads: 214
SYS-CON Events announced today that MobiDev, a software development company, will exhibit at the 17th International Cloud Expo®, which will take place November 3–5, 2015, at the Santa Clara Convention Center in Santa Clara, CA. MobiDev is a software development company with representative offices in Atlanta (US), Sheffield (UK) and Würzburg (Germany); and development centers in Ukraine. Since 2009 it has grown from a small group of passionate engineers and business managers to a full-scale mobi...
Aug. 3, 2015 09:45 AM EDT Reads: 375
There are many considerations when moving applications from on-premise to cloud. It is critical to understand the benefits and also challenges of this migration. A successful migration will result in lower Total Cost of Ownership, yet offer the same or higher level of robustness. In his session at 15th Cloud Expo, Michael Meiner, an Engineering Director at Oracle, Corporation, analyzed a range of cloud offerings (IaaS, PaaS, SaaS) and discussed the benefits/challenges of migrating to each offe...
Aug. 3, 2015 07:30 AM EDT Reads: 199