Welcome!

News Feed Item

New Online Tool Helps Patient Advocates Navigate Medicines Development and Evaluation Process

INDIANAPOLIS, March 24, 2014 /PRNewswire/ --



A new online, interactive training programme designed to help patient advocates better influence decisions related to access to new medicines was launched today in advance of the 6th  Global  Patient  Congress at Ascot, United Kingdom.

Developed by Eli Lilly and Company in collaboration with internationally renowned experts in the fields of patient involvement and health technology assessment (HTA), the eMEET (Medicine Evaluation Educational Training) online resource is a unique tool designed to help patient advocates navigate the complex world of medicines development, evaluation and assessment. eMEET is endorsed by Health Technology Assessment International (HTAi), the global scientific and professional society for those who produce, use, or encounter HTA.[1]

"The growing role of patient engagement in the medicines evaluation process is one of the key drivers to improving access - and patient advocates have much to contribute," commented clinical expert Professor Ken Paterson, Former Chair, Scottish Medicines Consortium. "By helping ensure patients have a voice, it's a win for the healthcare system, a win for the HTA process and most importantly, a win for patients."

Patients have unique knowledge about what it's like to live with an illness, the possible limitations of existing treatments and the potential of new therapies. However, ensuring that patients' experiences are considered can be challenging in an environment where decisions are scientifically based.

"It's absolutely crucial that patient advocates understand the medicine development and HTA processes. Advocates can then make a more robust contribution to the medicines evaluation discussion and be accepted as an equal and knowledgeable stakeholder in healthcare decisions," said Kathy Oliver, Co-director for the International Brain Tumour Alliance (IBTA). "eMEET is a great resource. It's easily accessible online, you can learn at your own pace, and it's an enjoyable and valuable educational tool."

eMEET uses a variety of tools, such as video presentations, animations and exercises to show how patients' experiences can be integrated into these complex processes. The programme helps patient advocates ensure, in the most productive and meaningful way, that their input to the medicines evaluation process successfully highlights patient issues, informs decision-making and aligns with the scientific evidence.

"Evidence from patients can help us understand the challenges associated with current therapies and what they would want from new treatments," said Dr. Karen Facey, HTAi Interest Group for Patient/Citizen involvement in HTA. "This can help us put the scientific evidence into context and understand the true value of a treatment."

The eMEET training programme is presented in modules focused on:

  1. Introduction  and  scene-setting  - the  true  value  of  the  patient  voice
  2. The  journey  of  a  medicine - the  complex  process  of  medicines  discovery,  development  and  evaluation
  3. An  introduction  to  HTA
  4. HTA  in  practice - an  illustration  of  the  complexities  of  health  technology  assessment
  5. Patient  advocacy  group  participation  in  HTA  - how  to  engage  effectively  to  ensure  that  HTA  panels  understand  patients'  needs  and  preferences

eMEET is the online component of the broader MEET programme. Translated into multiple languages, MEET was developed as an interactive one-day training workshop designed to help patient advocacy group leaders understand and engage in the journey of a medicine, including: clinical trials, regulatory evaluation and HTA. eMEET does not focus on any specific disease state. MEET and eMEET are part of the advocacy component of PACE (Patient Access to Cancer care Excellence), a Lilly Oncology initiative. For more information, please visit http://www.meetforpatients.com.

To view the multi-media press release, including the MEET video testimonials, eMEET teaser video and eMEET brochure please click the link below.

www.epresspack.net/mmr/news/5296

About  HTA

According to Health Technology Assessment International's "HTAi Patient and Consumer Glossary," health technology assessment is the "systematic evaluation of the clinical effectiveness and/or cost-effectiveness and/or the social and ethical impact of a health technology" (such as a medicine) "on the lives of patients and the healthcare system." Its aim is to educate healthcare policymakers. HTA organisations, such as NICE (National Institute for Health and Care Excellence) in the United Kingdom, recommend whether a specific health technology should be used, and if so, in which setting and for which patients. According to the glossary, "assessments vary, but most look at the health benefits and risks of using the technology. They also look at costs and any wider impacts that the technology might have on a population or on society."[2]

About  PACE 

Created by Lilly Oncology as a global collaboration spanning diverse sectors, PACE (Patient Access to Cancer care Excellence) exists to encourage public policies and healthcare decisions that speed the development of new medicines, assure cancer treatments respond to the needs and qualities of individual patients, and improve patient access to the most effective cancer medicines. PACE is engaging key oncology stakeholders: patients, advocacy, payers, policymakers, providers, the public, researchers and politicians. To learn more about PACE and the PACE  Cancer  Perception  Index, please visit http://www.pacenetwork.com.

About  Lilly  Oncology

For more than fifty years, Lilly has been dedicated to delivering life-changing medicines and support to people living with cancer and those who care for them. Lilly is determined to build on this heritage and continue making life better for all those affected by cancer around the world. To learn more about Lilly's commitment to people with cancer, please visit http://www.LillyOncology.com.

About Eli Lilly and Company

Lilly is a global healthcare leader that unites caring with discovery to make life better for people around the world. We were founded more than a century ago by a man committed to creating high-quality medicines that meet real needs, and today we remain true to that mission in all our work. Across the globe, Lilly employees work to discover and bring life-changing medicines to those who need them, improve the understanding and management of disease, and give back to communities through philanthropy and volunteerism. To learn more about Lilly, please visit us at http://www.lilly.com and http://newsroom.lilly.com/social-channels.

References:

1. Health Technology Assessment International. What is HTAi? Available at http://www.htai.org/index.php?id=428. Accessed 21 March 2014.

2. Health Technology Assessment International. HTAi Patient and Consumer Glossary: A beginner’s guide to words used in health technology assessment. October 2009. Available at http://www.ihe.ca/documents/HTAiPatientAndConsumerGlossaryOctober2009_01.pdf. Accessed 21 March 2014.

More Stories By PR Newswire

Copyright © 2007 PR Newswire. All rights reserved. Republication or redistribution of PRNewswire content is expressly prohibited without the prior written consent of PRNewswire. PRNewswire shall not be liable for any errors or delays in the content, or for any actions taken in reliance thereon.

Latest Stories
DX World EXPO, LLC, a Lighthouse Point, Florida-based startup trade show producer and the creator of "DXWorldEXPO® - Digital Transformation Conference & Expo" has announced its executive management team. The team is headed by Levent Selamoglu, who has been named CEO. "Now is the time for a truly global DX event, to bring together the leading minds from the technology world in a conversation about Digital Transformation," he said in making the announcement.
"Space Monkey by Vivent Smart Home is a product that is a distributed cloud-based edge storage network. Vivent Smart Home, our parent company, is a smart home provider that places a lot of hard drives across homes in North America," explained JT Olds, Director of Engineering, and Brandon Crowfeather, Product Manager, at Vivint Smart Home, in this SYS-CON.tv interview at @ThingsExpo, held Oct 31 – Nov 2, 2017, at the Santa Clara Convention Center in Santa Clara, CA.
SYS-CON Events announced today that Conference Guru has been named “Media Sponsor” of the 22nd International Cloud Expo, which will take place on June 5-7, 2018, at the Javits Center in New York, NY. A valuable conference experience generates new contacts, sales leads, potential strategic partners and potential investors; helps gather competitive intelligence and even provides inspiration for new products and services. Conference Guru works with conference organizers to pass great deals to gre...
DevOps is under attack because developers don’t want to mess with infrastructure. They will happily own their code into production, but want to use platforms instead of raw automation. That’s changing the landscape that we understand as DevOps with both architecture concepts (CloudNative) and process redefinition (SRE). Rob Hirschfeld’s recent work in Kubernetes operations has led to the conclusion that containers and related platforms have changed the way we should be thinking about DevOps and...
The Internet of Things will challenge the status quo of how IT and development organizations operate. Or will it? Certainly the fog layer of IoT requires special insights about data ontology, security and transactional integrity. But the developmental challenges are the same: People, Process and Platform. In his session at @ThingsExpo, Craig Sproule, CEO of Metavine, demonstrated how to move beyond today's coding paradigm and shared the must-have mindsets for removing complexity from the develop...
In his Opening Keynote at 21st Cloud Expo, John Considine, General Manager of IBM Cloud Infrastructure, led attendees through the exciting evolution of the cloud. He looked at this major disruption from the perspective of technology, business models, and what this means for enterprises of all sizes. John Considine is General Manager of Cloud Infrastructure Services at IBM. In that role he is responsible for leading IBM’s public cloud infrastructure including strategy, development, and offering m...
The next XaaS is CICDaaS. Why? Because CICD saves developers a huge amount of time. CD is an especially great option for projects that require multiple and frequent contributions to be integrated. But… securing CICD best practices is an emerging, essential, yet little understood practice for DevOps teams and their Cloud Service Providers. The only way to get CICD to work in a highly secure environment takes collaboration, patience and persistence. Building CICD in the cloud requires rigorous ar...
Companies are harnessing data in ways we once associated with science fiction. Analysts have access to a plethora of visualization and reporting tools, but considering the vast amount of data businesses collect and limitations of CPUs, end users are forced to design their structures and systems with limitations. Until now. As the cloud toolkit to analyze data has evolved, GPUs have stepped in to massively parallel SQL, visualization and machine learning.
"Evatronix provides design services to companies that need to integrate the IoT technology in their products but they don't necessarily have the expertise, knowledge and design team to do so," explained Adam Morawiec, VP of Business Development at Evatronix, in this SYS-CON.tv interview at @ThingsExpo, held Oct 31 – Nov 2, 2017, at the Santa Clara Convention Center in Santa Clara, CA.
To get the most out of their data, successful companies are not focusing on queries and data lakes, they are actively integrating analytics into their operations with a data-first application development approach. Real-time adjustments to improve revenues, reduce costs, or mitigate risk rely on applications that minimize latency on a variety of data sources. In his session at @BigDataExpo, Jack Norris, Senior Vice President, Data and Applications at MapR Technologies, reviewed best practices to ...
Widespread fragmentation is stalling the growth of the IIoT and making it difficult for partners to work together. The number of software platforms, apps, hardware and connectivity standards is creating paralysis among businesses that are afraid of being locked into a solution. EdgeX Foundry is unifying the community around a common IoT edge framework and an ecosystem of interoperable components.
"ZeroStack is a startup in Silicon Valley. We're solving a very interesting problem around bringing public cloud convenience with private cloud control for enterprises and mid-size companies," explained Kamesh Pemmaraju, VP of Product Management at ZeroStack, in this SYS-CON.tv interview at 21st Cloud Expo, held Oct 31 – Nov 2, 2017, at the Santa Clara Convention Center in Santa Clara, CA.
Large industrial manufacturing organizations are adopting the agile principles of cloud software companies. The industrial manufacturing development process has not scaled over time. Now that design CAD teams are geographically distributed, centralizing their work is key. With large multi-gigabyte projects, outdated tools have stifled industrial team agility, time-to-market milestones, and impacted P&L stakeholders.
"Akvelon is a software development company and we also provide consultancy services to folks who are looking to scale or accelerate their engineering roadmaps," explained Jeremiah Mothersell, Marketing Manager at Akvelon, in this SYS-CON.tv interview at 21st Cloud Expo, held Oct 31 – Nov 2, 2017, at the Santa Clara Convention Center in Santa Clara, CA.
Enterprises are adopting Kubernetes to accelerate the development and the delivery of cloud-native applications. However, sharing a Kubernetes cluster between members of the same team can be challenging. And, sharing clusters across multiple teams is even harder. Kubernetes offers several constructs to help implement segmentation and isolation. However, these primitives can be complex to understand and apply. As a result, it’s becoming common for enterprises to end up with several clusters. Thi...