Welcome!

News Feed Item

Local Forest Lake Family Attends 2014 National Walk For Epilepsy® In Washington, D.C.

MAPLE GROVE, Minn., March 25, 2014 /PRNewswire/ -- Upsher-Smith Laboratories, Inc. (Upsher-Smith), in partnership with the Epilepsy Foundation of Minnesota (EFMN), today announced that the Fletcher family from Forest Lake, Minnesota was awarded a sponsorship to attend the Epilepsy Foundation's National Walk for Epilepsy® in Washington, D.C. on March 22, 2014.

Pictured at the 2014 National Walk for Epilepsy(R): Scott Hussey, Sr. Vice President, Sales; Jordan Fletcher; Mary Melby; Callie Fletcher; Eric Hamborg, Vice President, CNS Sales; Rachael Newman; Tyler Melby; Chris Thibodeaux, Sr. Director, Therapeutic Education and Communication; Mark Evenstad, President and CEO

The Fletcher family is all too familiar with seizure disorders. Callie Fletcher, now 14, began experiencing absence seizures—a type of generalized seizures—at age six. Now, with proper medication, her seizures are well-managed. Brother Jordan, 11, has had a tougher road. Beginning with a grand mal seizure—also known as a tonic-clonic seizure—at eighteen months, his condition has grown in intensity and makes it hard for him to live like other sixth graders. Then, just last year, their mother, Rachael Newman, experienced her first seizure. She and her children eagerly anticipated meeting people who shared their experiences when they attended the Walk.

"Callie really enjoyed it, and for Jordan it was a chance to be around kids like him," said Newman. "We are so thankful to Upsher-Smith and the Epilepsy Foundation of Minnesota for giving us this opportunity."

About the Fletcher Family
Callie Fletcher's absence seizures started so subtly at age six that doctors first thought she had ADHD. Since being properly diagnosed, however, she has been able to manage her condition well with medications. Her brother Jordan presents a more challenging case. Beginning with a grand mal seizure at eighteen months, his seizures remain a significant challenge, leading his mother to try any route available to help her son.

"We've tried meds, we've tried diets, everything," she says. "You name it, we've done it."

This summer, the family will travel to the Mayo Clinic to do some brain mapping to learn more about how Jordan's brain functions1 and talk about possible surgery. In the meantime, Jordan and Callie help each other deal with the challenges they face.

"Having a sibling seems to help in that regard. Both of my kids go out of their way to explain epilepsy to their friends and classmates," Newman says. "They are very vocal, not ashamed at all."

Callie does gymnastics, and was proactive in speaking with her coaches to explain her condition. Newman says the response couldn't have been more positive, and although Callie's coaches are careful, they are happy to have her participate.

"Jordan has to sit out more," says Newman. "School can be tough for him because fifth and sixth graders only understand so much. Last year he was taken out of school by ambulance five or six times."

Despite the difficulty, both Fletcher kids do what they can to spread awareness. Last year, one of Callie's classmates began experiencing seizures. Newman says her daughter was the first to reach out. An estimated 1-in-26 people in the United States will develop epilepsy at some point in their lifetime.2

"She talked to the girl, gave her our number and told her to have her mother call me, and told her how to get in touch with the Epilepsy Foundation."

Just last year, Rachael herself experienced a seizure, her first, while attending her high school reunion.  "I was mortified, but it was eye opening," she says. "It gave me a better understanding of what Jordan is experiencing. In that way, I was thankful."

She has been seizure-free since, and her doctors are taking a wait and see approach before moving forward with treatment.

Newman says the National Walk for Epilepsy was a highlight for the family.

"Both kids were beyond excited," she says, adding that during a recent hospitalization, Jordan asked if he would still be able to go to the Walk. "It was a bright spot, it gave him something to look forward to."

Both Fletcher children attend the Epilepsy Foundation's Camp Oz every summer, where they are able to connect with other kids who face the same challenges.

"When Jordan gets around kids like him, you can see the walls come down. He's able to be himself."

About the National Walk for Epilepsy®
The National Walk for Epilepsy® is a family oriented, noncompetitive walk in our nation's capital to raise awareness and funds to continue the fight to stop seizures, find a cure and overcome the challenges created by epilepsy through efforts including education, advocacy and research to accelerate ideas into therapies.  The Walk helps to support new and innovative epilepsy therapies and research, develop programs to educate the community, including school nurses, and first responders and to support advocacy efforts against epilepsy-related discrimination and national healthcare reform.

This year marks the eighth anniversary of The National Walk for Epilepsy® in Washington, D.C.  Each year, more than 5,000 people participate in the Walk in support of over two million Americans who live with epilepsy every day as well as their friends and loved ones.  For more information on The National Walk for Epilepsy®, visit: www.walkforepilepsy.org.

About The Epilepsy Foundation of Minnesota
The Epilepsy Foundation of Minnesota (EFMN) leads the fight to stop seizures, find a cure and overcome the challenges created by epilepsy. One in 10 Americans will have a seizure in their lifetime, and 60,000 Minnesotans have epilepsy, also known as a seizure disorder. This is enough people to fill TCF Bank Stadium beyond its 50,000 seat capacity.  The Foundation's programs and services cover all of Minnesota and Eastern North Dakota. Those interested in any of its programs may contact Vicki Kopplin at 651-287-2314 or via email at [email protected].  To learn more, please visit: www.epilepsyfoundationmn.org.   

About Upsher-Smith
Upsher-Smith Laboratories, Inc., founded in 1919, is a growing pharmaceutical company dedicated to its mission of Advancing Pharmacotherapy. Improving Life™. With capabilities ranging from early-stage research to delivering on-market products, Upsher-Smith is committed to offering quality products that enable people to live life to its greatest potential. Upsher-Smith's approach to product development and partnering has resulted in a broad range of both branded and generic therapeutic solutions to address patients' needs. The Company has a particular focus on developing therapies for people living with central nervous system (CNS) conditions, such as seizure disorders, and has a robust pipeline of promising CNS compounds in various stages of development. For more information, visit www.upsher-smith.com.

References

1. Epilepsy.com. Available at: http://www.epilepsy.com/epilepsy/surgery_brainmap. Accessed on March 3, 2014.

2. Epilepsy Foundation. Available at: http://www.epilepsyfoundation.org/livingwithepilepsy/onein26/index.cfm. Accessed on March 3, 2014.

Upsher-Smith Laboratories, Inc.

Photo - http://photos.prnewswire.com/prnh/20140325/NY89562  
Logo: http://photos.prnewswire.com/prnh/20130520/NY17281LOGO

SOURCE Upsher-Smith Laboratories, Inc.

More Stories By PR Newswire

Copyright © 2007 PR Newswire. All rights reserved. Republication or redistribution of PRNewswire content is expressly prohibited without the prior written consent of PRNewswire. PRNewswire shall not be liable for any errors or delays in the content, or for any actions taken in reliance thereon.

Latest Stories
Video experiences should be unique and exciting! But that doesn’t mean you need to patch all the pieces yourself. Users demand rich and engaging experiences and new ways to connect with you. But creating robust video applications at scale can be complicated, time-consuming and expensive. In his session at @ThingsExpo, Zohar Babin, Vice President of Platform, Ecosystem and Community at Kaltura, discussed how VPaaS enables you to move fast, creating scalable video experiences that reach your aud...
All clouds are not equal. To succeed in a DevOps context, organizations should plan to develop/deploy apps across a choice of on-premise and public clouds simultaneously depending on the business needs. This is where the concept of the Lean Cloud comes in - resting on the idea that you often need to relocate your app modules over their life cycles for both innovation and operational efficiency in the cloud. In his session at @DevOpsSummit at19th Cloud Expo, Valentin (Val) Bercovici, CTO of Soli...
"Once customers get a year into their IoT deployments, they start to realize that they may have been shortsighted in the ways they built out their deployment and the key thing I see a lot of people looking at is - how can I take equipment data, pull it back in an IoT solution and show it in a dashboard," stated Dave McCarthy, Director of Products at Bsquare Corporation, in this SYS-CON.tv interview at @ThingsExpo, held November 1-3, 2016, at the Santa Clara Convention Center in Santa Clara, CA.
What happens when the different parts of a vehicle become smarter than the vehicle itself? As we move toward the era of smart everything, hundreds of entities in a vehicle that communicate with each other, the vehicle and external systems create a need for identity orchestration so that all entities work as a conglomerate. Much like an orchestra without a conductor, without the ability to secure, control, and connect the link between a vehicle’s head unit, devices, and systems and to manage the ...
An IoT product’s log files speak volumes about what’s happening with your products in the field, pinpointing current and potential issues, and enabling you to predict failures and save millions of dollars in inventory. But until recently, no one knew how to listen. In his session at @ThingsExpo, Dan Gettens, Chief Research Officer at OnProcess, discussed recent research by Massachusetts Institute of Technology and OnProcess Technology, where MIT created a new, breakthrough analytics model for ...
IoT is rapidly changing the way enterprises are using data to improve business decision-making. In order to derive business value, organizations must unlock insights from the data gathered and then act on these. In their session at @ThingsExpo, Eric Hoffman, Vice President at EastBanc Technologies, and Peter Shashkin, Head of Development Department at EastBanc Technologies, discussed how one organization leveraged IoT, cloud technology and data analysis to improve customer experiences and effici...
Everyone knows that truly innovative companies learn as they go along, pushing boundaries in response to market changes and demands. What's more of a mystery is how to balance innovation on a fresh platform built from scratch with the legacy tech stack, product suite and customers that continue to serve as the business' foundation. In his General Session at 19th Cloud Expo, Michael Chambliss, Head of Engineering at ReadyTalk, discussed why and how ReadyTalk diverted from healthy revenue and mor...
The 20th International Cloud Expo has announced that its Call for Papers is open. Cloud Expo, to be held June 6-8, 2017, at the Javits Center in New York City, brings together Cloud Computing, Big Data, Internet of Things, DevOps, Containers, Microservices and WebRTC to one location. With cloud computing driving a higher percentage of enterprise IT budgets every year, it becomes increasingly important to plant your flag in this fast-expanding business opportunity. Submit your speaking proposal ...
In this strange new world where more and more power is drawn from business technology, companies are effectively straddling two paths on the road to innovation and transformation into digital enterprises. The first path is the heritage trail – with “legacy” technology forming the background. Here, extant technologies are transformed by core IT teams to provide more API-driven approaches. Legacy systems can restrict companies that are transitioning into digital enterprises. To truly become a lead...
You have great SaaS business app ideas. You want to turn your idea quickly into a functional and engaging proof of concept. You need to be able to modify it to meet customers' needs, and you need to deliver a complete and secure SaaS application. How could you achieve all the above and yet avoid unforeseen IT requirements that add unnecessary cost and complexity? You also want your app to be responsive in any device at any time. In his session at 19th Cloud Expo, Mark Allen, General Manager of...
The Internet of Things (IoT) promises to simplify and streamline our lives by automating routine tasks that distract us from our goals. This promise is based on the ubiquitous deployment of smart, connected devices that link everything from industrial control systems to automobiles to refrigerators. Unfortunately, comparatively few of the devices currently deployed have been developed with an eye toward security, and as the DDoS attacks of late October 2016 have demonstrated, this oversight can ...
"MathFreeOn.com is a line coding platform for engineers and scientists. When they want to solve an engineering problem and they have to use software - they have to pay a lot of money for licenses - but with MathFreeOn you don't have to pay a lot of money. Just go to our site and write the code and you can check the result right away," explained Simon Lee, CMO of MathFreeOn, in this SYS-CON.tv interview at 19th Cloud Expo, held November 1-3, 2016, at the Santa Clara Convention Center in Santa Cla...
In his session at 19th Cloud Expo, Claude Remillard, Principal Program Manager in Developer Division at Microsoft, contrasted how his team used config as code and immutable patterns for continuous delivery of microservices and apps to the cloud. He showed how the immutable patterns helps developers do away with most of the complexity of config as code-enabling scenarios such as rollback, zero downtime upgrades with far greater simplicity. He also demoed building immutable pipelines in the cloud ...
As data explodes in quantity, importance and from new sources, the need for managing and protecting data residing across physical, virtual, and cloud environments grow with it. Managing data includes protecting it, indexing and classifying it for true, long-term management, compliance and E-Discovery. Commvault can ensure this with a single pane of glass solution – whether in a private cloud, a Service Provider delivered public cloud or a hybrid cloud environment – across the heterogeneous enter...
Bert Loomis was a visionary. This general session will highlight how Bert Loomis and people like him inspire us to build great things with small inventions. In their general session at 19th Cloud Expo, Harold Hannon, Architect at IBM Bluemix, and Michael O'Neill, Strategic Business Development at Nvidia, discussed the accelerating pace of AI development and how IBM Cloud and NVIDIA are partnering to bring AI capabilities to "every day," on-demand. They also reviewed two "free infrastructure" pr...