Welcome!

News Feed Item

Local Forest Lake Family Attends 2014 National Walk For Epilepsy® In Washington, D.C.

MAPLE GROVE, Minn., March 25, 2014 /PRNewswire/ -- Upsher-Smith Laboratories, Inc. (Upsher-Smith), in partnership with the Epilepsy Foundation of Minnesota (EFMN), today announced that the Fletcher family from Forest Lake, Minnesota was awarded a sponsorship to attend the Epilepsy Foundation's National Walk for Epilepsy® in Washington, D.C. on March 22, 2014.

Pictured at the 2014 National Walk for Epilepsy(R): Scott Hussey, Sr. Vice President, Sales; Jordan Fletcher; Mary Melby; Callie Fletcher; Eric Hamborg, Vice President, CNS Sales; Rachael Newman; Tyler Melby; Chris Thibodeaux, Sr. Director, Therapeutic Education and Communication; Mark Evenstad, President and CEO

The Fletcher family is all too familiar with seizure disorders. Callie Fletcher, now 14, began experiencing absence seizures—a type of generalized seizures—at age six. Now, with proper medication, her seizures are well-managed. Brother Jordan, 11, has had a tougher road. Beginning with a grand mal seizure—also known as a tonic-clonic seizure—at eighteen months, his condition has grown in intensity and makes it hard for him to live like other sixth graders. Then, just last year, their mother, Rachael Newman, experienced her first seizure. She and her children eagerly anticipated meeting people who shared their experiences when they attended the Walk.

"Callie really enjoyed it, and for Jordan it was a chance to be around kids like him," said Newman. "We are so thankful to Upsher-Smith and the Epilepsy Foundation of Minnesota for giving us this opportunity."

About the Fletcher Family
Callie Fletcher's absence seizures started so subtly at age six that doctors first thought she had ADHD. Since being properly diagnosed, however, she has been able to manage her condition well with medications. Her brother Jordan presents a more challenging case. Beginning with a grand mal seizure at eighteen months, his seizures remain a significant challenge, leading his mother to try any route available to help her son.

"We've tried meds, we've tried diets, everything," she says. "You name it, we've done it."

This summer, the family will travel to the Mayo Clinic to do some brain mapping to learn more about how Jordan's brain functions1 and talk about possible surgery. In the meantime, Jordan and Callie help each other deal with the challenges they face.

"Having a sibling seems to help in that regard. Both of my kids go out of their way to explain epilepsy to their friends and classmates," Newman says. "They are very vocal, not ashamed at all."

Callie does gymnastics, and was proactive in speaking with her coaches to explain her condition. Newman says the response couldn't have been more positive, and although Callie's coaches are careful, they are happy to have her participate.

"Jordan has to sit out more," says Newman. "School can be tough for him because fifth and sixth graders only understand so much. Last year he was taken out of school by ambulance five or six times."

Despite the difficulty, both Fletcher kids do what they can to spread awareness. Last year, one of Callie's classmates began experiencing seizures. Newman says her daughter was the first to reach out. An estimated 1-in-26 people in the United States will develop epilepsy at some point in their lifetime.2

"She talked to the girl, gave her our number and told her to have her mother call me, and told her how to get in touch with the Epilepsy Foundation."

Just last year, Rachael herself experienced a seizure, her first, while attending her high school reunion.  "I was mortified, but it was eye opening," she says. "It gave me a better understanding of what Jordan is experiencing. In that way, I was thankful."

She has been seizure-free since, and her doctors are taking a wait and see approach before moving forward with treatment.

Newman says the National Walk for Epilepsy was a highlight for the family.

"Both kids were beyond excited," she says, adding that during a recent hospitalization, Jordan asked if he would still be able to go to the Walk. "It was a bright spot, it gave him something to look forward to."

Both Fletcher children attend the Epilepsy Foundation's Camp Oz every summer, where they are able to connect with other kids who face the same challenges.

"When Jordan gets around kids like him, you can see the walls come down. He's able to be himself."

About the National Walk for Epilepsy®
The National Walk for Epilepsy® is a family oriented, noncompetitive walk in our nation's capital to raise awareness and funds to continue the fight to stop seizures, find a cure and overcome the challenges created by epilepsy through efforts including education, advocacy and research to accelerate ideas into therapies.  The Walk helps to support new and innovative epilepsy therapies and research, develop programs to educate the community, including school nurses, and first responders and to support advocacy efforts against epilepsy-related discrimination and national healthcare reform.

This year marks the eighth anniversary of The National Walk for Epilepsy® in Washington, D.C.  Each year, more than 5,000 people participate in the Walk in support of over two million Americans who live with epilepsy every day as well as their friends and loved ones.  For more information on The National Walk for Epilepsy®, visit: www.walkforepilepsy.org.

About The Epilepsy Foundation of Minnesota
The Epilepsy Foundation of Minnesota (EFMN) leads the fight to stop seizures, find a cure and overcome the challenges created by epilepsy. One in 10 Americans will have a seizure in their lifetime, and 60,000 Minnesotans have epilepsy, also known as a seizure disorder. This is enough people to fill TCF Bank Stadium beyond its 50,000 seat capacity.  The Foundation's programs and services cover all of Minnesota and Eastern North Dakota. Those interested in any of its programs may contact Vicki Kopplin at 651-287-2314 or via email at [email protected].  To learn more, please visit: www.epilepsyfoundationmn.org.   

About Upsher-Smith
Upsher-Smith Laboratories, Inc., founded in 1919, is a growing pharmaceutical company dedicated to its mission of Advancing Pharmacotherapy. Improving Life™. With capabilities ranging from early-stage research to delivering on-market products, Upsher-Smith is committed to offering quality products that enable people to live life to its greatest potential. Upsher-Smith's approach to product development and partnering has resulted in a broad range of both branded and generic therapeutic solutions to address patients' needs. The Company has a particular focus on developing therapies for people living with central nervous system (CNS) conditions, such as seizure disorders, and has a robust pipeline of promising CNS compounds in various stages of development. For more information, visit www.upsher-smith.com.

References

1. Epilepsy.com. Available at: http://www.epilepsy.com/epilepsy/surgery_brainmap. Accessed on March 3, 2014.

2. Epilepsy Foundation. Available at: http://www.epilepsyfoundation.org/livingwithepilepsy/onein26/index.cfm. Accessed on March 3, 2014.

Upsher-Smith Laboratories, Inc.

Photo - http://photos.prnewswire.com/prnh/20140325/NY89562  
Logo: http://photos.prnewswire.com/prnh/20130520/NY17281LOGO

SOURCE Upsher-Smith Laboratories, Inc.

More Stories By PR Newswire

Copyright © 2007 PR Newswire. All rights reserved. Republication or redistribution of PRNewswire content is expressly prohibited without the prior written consent of PRNewswire. PRNewswire shall not be liable for any errors or delays in the content, or for any actions taken in reliance thereon.

Latest Stories
Information technology is an industry that has always experienced change, and the dramatic change sweeping across the industry today could not be truthfully described as the first time we've seen such widespread change impacting customer investments. However, the rate of the change, and the potential outcomes from today's digital transformation has the distinct potential to separate the industry into two camps: Organizations that see the change coming, embrace it, and successful leverage it; and...
There is growing need for data-driven applications and the need for digital platforms to build these apps. In his session at 19th Cloud Expo, Muddu Sudhakar, VP and GM of Security & IoT at Splunk, will cover different PaaS solutions and Big Data platforms that are available to build applications. In addition, AI and machine learning are creating new requirements that developers need in the building of next-gen apps. The next-generation digital platforms have some of the past platform needs a...
Without a clear strategy for cost control and an architecture designed with cloud services in mind, costs and operational performance can quickly get out of control. To avoid multiple architectural redesigns requires extensive thought and planning. Boundary (now part of BMC) launched a new public-facing multi-tenant high resolution monitoring service on Amazon AWS two years ago, facing challenges and learning best practices in the early days of the new service. In his session at 19th Cloud Exp...
SYS-CON Events announced today that Secure Channels will exhibit at the 19th International Cloud Expo, which will take place on November 1–3, 2016, at the Santa Clara Convention Center in Santa Clara, CA. The bedrock of Secure Channels Technology is a uniquely modified and enhanced process based on superencipherment. Superencipherment is the process of encrypting an already encrypted message one or more times, either using the same or a different algorithm.
While DevOps promises a better and tighter integration among an organization’s development and operation teams and transforms an application life cycle into a continual deployment, Chef and Azure together provides a speedy, cost-effective and highly scalable vehicle for realizing the business values of this transformation. In his session at @DevOpsSummit at 19th Cloud Expo, Yung Chou, a Technology Evangelist at Microsoft, will present a unique opportunity to witness how Chef and Azure work tog...
SYS-CON Events announced today that Numerex Corp, a leading provider of managed enterprise solutions enabling the Internet of Things (IoT), will exhibit at the 19th International Cloud Expo | @ThingsExpo, which will take place on November 1–3, 2016, at the Santa Clara Convention Center in Santa Clara, CA. Numerex Corp. (NASDAQ:NMRX) is a leading provider of managed enterprise solutions enabling the Internet of Things (IoT). The Company's solutions produce new revenue streams or create operating...
Almost two-thirds of companies either have or soon will have IoT as the backbone of their business in 2016. However, IoT is far more complex than most firms expected. How can you not get trapped in the pitfalls? In his session at @ThingsExpo, Tony Shan, a renowned visionary and thought leader, will introduce a holistic method of IoTification, which is the process of IoTifying the existing technology and business models to adopt and leverage IoT. He will drill down to the components in this fra...
I'm a lonely sensor. I spend all day telling the world how I'm feeling, but none of the other sensors seem to care. I want to be connected. I want to build relationships with other sensors to be more useful for my human. I want my human to understand that when my friends next door are too hot for a while, I'll soon be flaming. And when all my friends go outside without me, I may be left behind. Don't just log my data; use the relationship graph. In his session at @ThingsExpo, Ryan Boyd, Engi...
IoT is fundamentally transforming the auto industry, turning the vehicle into a hub for connected services, including safety, infotainment and usage-based insurance. Auto manufacturers – and businesses across all verticals – have built an entire ecosystem around the Connected Car, creating new customer touch points and revenue streams. In his session at @ThingsExpo, Macario Namie, Head of IoT Strategy at Cisco Jasper, will share real-world examples of how IoT transforms the car from a static p...
SYS-CON Events announced today that Pulzze Systems will exhibit at the 19th International Cloud Expo, which will take place on November 1–3, 2016, at the Santa Clara Convention Center in Santa Clara, CA. Pulzze Systems, Inc. provides infrastructure products for the Internet of Things to enable any connected device and system to carry out matched operations without programming. For more information, visit http://www.pulzzesystems.com.
If you’re responsible for an application that depends on the data or functionality of various IoT endpoints – either sensors or devices – your brand reputation depends on the security, reliability, and compliance of its many integrated parts. If your application fails to deliver the expected business results, your customers and partners won't care if that failure stems from the code you developed or from a component that you integrated. What can you do to ensure that the endpoints work as expect...
DevOps at Cloud Expo – being held November 1-3, 2016, at the Santa Clara Convention Center in Santa Clara, CA – announces that its Call for Papers is open. Born out of proven success in agile development, cloud computing, and process automation, DevOps is a macro trend you cannot afford to miss. From showcase success stories from early adopters and web-scale businesses, DevOps is expanding to organizations of all sizes, including the world's largest enterprises – and delivering real results. Am...
The Internet of Things can drive efficiency for airlines and airports. In their session at @ThingsExpo, Shyam Varan Nath, Principal Architect with GE, and Sudip Majumder, senior director of development at Oracle, will discuss the technical details of the connected airline baggage and related social media solutions. These IoT applications will enhance travelers' journey experience and drive efficiency for the airlines and the airports. The session will include a working demo and a technical d...
SYS-CON Events announced today that Commvault, a global leader in enterprise data protection and information management, has been named “Bronze Sponsor” of SYS-CON's 19th International Cloud Expo, which will take place on November 1–3, 2016, at the Santa Clara Convention Center in Santa Clara, CA. Commvault is a leading provider of data protection and information management solutions, helping companies worldwide activate their data to drive more value and business insight and to transform moder...
The Transparent Cloud-computing Consortium (abbreviation: T-Cloud Consortium) will conduct research activities into changes in the computing model as a result of collaboration between "device" and "cloud" and the creation of new value and markets through organic data processing High speed and high quality networks, and dramatic improvements in computer processing capabilities, have greatly changed the nature of applications and made the storing and processing of data on the network commonplace.