Welcome!

News Feed Item

Parkinson's Disease Foundation Announces $20,000 in Grant Funding for Patient-Centered Research to Speed New Treatments

Supports Partnerships Between Patient Advocates and Scientists at Four Leading Parkinson's Research Centers

NEW YORK, March 28, 2014 /PRNewswire-USNewswire/ -- The Parkinson's Disease Foundation® (PDF®) is pleased to announce $20,000 in grant funding to support patient-centered research at four leading Parkinson's disease research institutions.  The grants are provided through PDF's first Parkinson's Advocates in Research (PAIR) Leadership Awards.  These awards support partnerships between researchers and patient advocates who are working to speed treatments for Parkinson's disease.

Parkinson's Disease Foundation logo

"As a clinician-scientist, it is exciting to see PDF leading our field toward increased collaboration with people who live with Parkinson's disease," said Christina Vaughan, M.D., M.H.S., Assistant Professor of Neurology at the Medical University of South Carolina.  Dr. Vaughan, who is an award recipient with PDF Research Advocates Jay Phillips and Marilyn Phillips, P.T., of Charleston, SC, continued, "PDF recognizes what I have experienced in my work – patients who understand what it means to live with this disease can help to accelerate research."

PDF has been a pioneer in patient engagement for the past decade, advocating for increased patient involvement in the research process; creating educational tools to help people with Parkinson's stay informed; engaging patient advocates in its own research programs; and providing training for more than 230 volunteer PDF Research Advocates around the United States.

"PDF knows that true innovation is possible when we bring together those with the greatest expertise in the disease – people with Parkinson's and scientists," said Veronica Todaro, M.P.H., Vice President, National Programs at PDF.  "We are proud to support these four outstanding teams, whose work as emerging leaders in patient engagement will ultimately speed new treatments for Parkinson's disease."

The recipients of PDF's first PAIR Leadership Awards are listed below.  Learn more by visiting www.pdf.org or by calling (800) 457-6676.

Participant Retention in Parkinson's and Huntington's Clinical Studies
Patricia Ede, R.N., B.S.N., Clinical Study Coordinator, Struthers Parkinson's Center, Martha Nance, M.D., Medical Director, Struthers Parkinson's Center and Professor of Neurology, University of Minnesota, and Kim and Libbe Erickson, PDF Research Advocates, Stillwater, MN

Opportunities and Challenges in Building Patient-Researcher Collaborations to Accelerate Parkinson's Clinical Research
Benzi M. Kluger, M.D., M.S., Director, Movement Disorders Center and Associate Professor, Neurology, University of Colorado, and Diane Cook, PDF Research Advocate and member, PDF People with Parkinson's Advisory Council, Denver, CO

Self-Reported Benefits of Participation in a Singing Group (Tremble Clefs) in Parkinson Disease
Stephanie Lessig, M.D., Associate Professor, Department of Neurosciences, University of California, San Diego, School of Medicine and Chief of Neurology, Veterans Affairs Medical Center, and Thelma Balbes, M.A., PDF Research Advocate, Carlsbad, CA

Tele-Neurological Assessments of Patients with Parkinson's Disease 
Christina Vaughan, M.D., M.H.S., Assistant Professor of Neurology, Medical University of South Carolina, and Jay Phillips and Marilyn Phillips, P.T., PDF Research Advocates, Charleston, SC

About Parkinson's Disease 
Parkinson's disease is a progressive neurological disorder that affects nearly one million people in the United States and seven to 10 million people worldwide.  Although promising research is being conducted, there is currently no cure for Parkinson's disease.

About PDF Research 
Central to the mission of the Parkinson's Disease Foundation (PDF) is our commitment to funding research that is focused on three results: solving, treating and ending Parkinson's disease.  In the calendar year 2014, PDF will contribute a total of $5 million towards Parkinson's disease research programs, funding three research centers, 40 scientific projects and 10 clinical fellows around the world.  A full list of this year's research projects is available on the PDF website at www.pdf.org/results_funded.    

About the Parkinson's Disease Foundation (PDF)
The Parkinson's Disease Foundation® (PDF®) is a leading national presence in Parkinson's disease research, education and public advocacy.  We are working for the nearly one million people in the US who live with Parkinson's disease by funding promising scientific research while supporting people living with Parkinson's disease through educational programs and services.  Since its founding in 1957, PDF has dedicated over $100 million to fund the work of leading scientists throughout the world and over $42 million to support national education and advocacy programs.

Logo - http://photos.prnewswire.com/prnh/20111101/DC97663LOGO

SOURCE Parkinson's Disease Foundation

More Stories By PR Newswire

Copyright © 2007 PR Newswire. All rights reserved. Republication or redistribution of PRNewswire content is expressly prohibited without the prior written consent of PRNewswire. PRNewswire shall not be liable for any errors or delays in the content, or for any actions taken in reliance thereon.

Latest Stories
"Outscale was founded in 2010, is based in France, is a strategic partner to Dassault Systémes and has done quite a bit of work with divisions of Dassault," explained Jackie Funk, Digital Marketing exec at Outscale, in this SYS-CON.tv interview at 20th Cloud Expo, held June 6-8, 2017, at the Javits Center in New York City, NY.
"We focus on SAP workloads because they are among the most powerful but somewhat challenging workloads out there to take into public cloud," explained Swen Conrad, CEO of Ocean9, Inc., in this SYS-CON.tv interview at 20th Cloud Expo, held June 6-8, 2017, at the Javits Center in New York City, NY.
"DivvyCloud as a company set out to help customers automate solutions to the most common cloud problems," noted Jeremy Snyder, VP of Business Development at DivvyCloud, in this SYS-CON.tv interview at 20th Cloud Expo, held June 6-8, 2017, at the Javits Center in New York City, NY.
"We provide IoT solutions. We provide the most compatible solutions for many applications. Our solutions are industry agnostic and also protocol agnostic," explained Richard Han, Head of Sales and Marketing and Engineering at Systena America, in this SYS-CON.tv interview at @ThingsExpo, held June 6-8, 2017, at the Javits Center in New York City, NY.
"We are still a relatively small software house and we are focusing on certain industries like FinTech, med tech, energy and utilities. We help our customers with their digital transformation," noted Piotr Stawinski, Founder and CEO of EARP Integration, in this SYS-CON.tv interview at 20th Cloud Expo, held June 6-8, 2017, at the Javits Center in New York City, NY.
"I think DevOps is now a rambunctious teenager – it’s starting to get a mind of its own, wanting to get its own things but it still needs some adult supervision," explained Thomas Hooker, VP of marketing at CollabNet, in this SYS-CON.tv interview at DevOps Summit at 20th Cloud Expo, held June 6-8, 2017, at the Javits Center in New York City, NY.
"We've been engaging with a lot of customers including Panasonic, we've been involved with Cisco and now we're working with the U.S. government - the Department of Homeland Security," explained Peter Jung, Chief Product Officer at Pulzze Systems, in this SYS-CON.tv interview at @ThingsExpo, held June 6-8, 2017, at the Javits Center in New York City, NY.
"We're here to tell the world about our cloud-scale infrastructure that we have at Juniper combined with the world-class security that we put into the cloud," explained Lisa Guess, VP of Systems Engineering at Juniper Networks, in this SYS-CON.tv interview at 20th Cloud Expo, held June 6-8, 2017, at the Javits Center in New York City, NY.
Your homes and cars can be automated and self-serviced. Why can't your storage? From simply asking questions to analyze and troubleshoot your infrastructure, to provisioning storage with snapshots, recovery and replication, your wildest sci-fi dream has come true. In his session at @DevOpsSummit at 20th Cloud Expo, Dan Florea, Director of Product Management at Tintri, provided a ChatOps demo where you can talk to your storage and manage it from anywhere, through Slack and similar services with...
"We were founded in 2003 and the way we were founded was about good backup and good disaster recovery for our clients, and for the last 20 years we've been pretty consistent with that," noted Marc Malafronte, Territory Manager at StorageCraft, in this SYS-CON.tv interview at 20th Cloud Expo, held June 6-8, 2017, at the Javits Center in New York City, NY.
"At the keynote this morning we spoke about the value proposition of Nutanix, of having a DevOps culture and a mindset, and the business outcomes of achieving agility and scale, which everybody here is trying to accomplish," noted Mark Lavi, DevOps Solution Architect at Nutanix, in this SYS-CON.tv interview at @DevOpsSummit at 20th Cloud Expo, held June 6-8, 2017, at the Javits Center in New York City, NY.
"We are an IT services solution provider and we sell software to support those solutions. Our focus and key areas are around security, enterprise monitoring, and continuous delivery optimization," noted John Balsavage, President of A&I Solutions, in this SYS-CON.tv interview at 20th Cloud Expo, held June 6-8, 2017, at the Javits Center in New York City, NY.
"We want to show that our solution is far less expensive with a much better total cost of ownership so we announced several key features. One is called geo-distributed erasure coding, another is support for KVM and we introduced a new capability called Multi-Part," explained Tim Desai, Senior Product Marketing Manager at Hitachi Data Systems, in this SYS-CON.tv interview at 20th Cloud Expo, held June 6-8, 2017, at the Javits Center in New York City, NY.
There is a huge demand for responsive, real-time mobile and web experiences, but current architectural patterns do not easily accommodate applications that respond to events in real time. Common solutions using message queues or HTTP long-polling quickly lead to resiliency, scalability and development velocity challenges. In his session at 21st Cloud Expo, Ryland Degnan, a Senior Software Engineer on the Netflix Edge Platform team, will discuss how by leveraging a reactive stream-based protocol,...
SYS-CON Events announced today that Calligo, an innovative cloud service provider offering mid-sized companies the highest levels of data privacy and security, has been named "Bronze Sponsor" of SYS-CON's 21st International Cloud Expo ®, which will take place on Oct 31 - Nov 2, 2017, at the Santa Clara Convention Center in Santa Clara, CA. Calligo offers unparalleled application performance guarantees, commercial flexibility and a personalised support service from its globally located cloud plat...