Welcome!

News Feed Item

Parkinson's Disease Foundation Announces $20,000 in Grant Funding for Patient-Centered Research to Speed New Treatments

Supports Partnerships Between Patient Advocates and Scientists at Four Leading Parkinson's Research Centers

NEW YORK, March 28, 2014 /PRNewswire-USNewswire/ -- The Parkinson's Disease Foundation® (PDF®) is pleased to announce $20,000 in grant funding to support patient-centered research at four leading Parkinson's disease research institutions.  The grants are provided through PDF's first Parkinson's Advocates in Research (PAIR) Leadership Awards.  These awards support partnerships between researchers and patient advocates who are working to speed treatments for Parkinson's disease.

Parkinson's Disease Foundation logo

"As a clinician-scientist, it is exciting to see PDF leading our field toward increased collaboration with people who live with Parkinson's disease," said Christina Vaughan, M.D., M.H.S., Assistant Professor of Neurology at the Medical University of South Carolina.  Dr. Vaughan, who is an award recipient with PDF Research Advocates Jay Phillips and Marilyn Phillips, P.T., of Charleston, SC, continued, "PDF recognizes what I have experienced in my work – patients who understand what it means to live with this disease can help to accelerate research."

PDF has been a pioneer in patient engagement for the past decade, advocating for increased patient involvement in the research process; creating educational tools to help people with Parkinson's stay informed; engaging patient advocates in its own research programs; and providing training for more than 230 volunteer PDF Research Advocates around the United States.

"PDF knows that true innovation is possible when we bring together those with the greatest expertise in the disease – people with Parkinson's and scientists," said Veronica Todaro, M.P.H., Vice President, National Programs at PDF.  "We are proud to support these four outstanding teams, whose work as emerging leaders in patient engagement will ultimately speed new treatments for Parkinson's disease."

The recipients of PDF's first PAIR Leadership Awards are listed below.  Learn more by visiting www.pdf.org or by calling (800) 457-6676.

Participant Retention in Parkinson's and Huntington's Clinical Studies
Patricia Ede, R.N., B.S.N., Clinical Study Coordinator, Struthers Parkinson's Center, Martha Nance, M.D., Medical Director, Struthers Parkinson's Center and Professor of Neurology, University of Minnesota, and Kim and Libbe Erickson, PDF Research Advocates, Stillwater, MN

Opportunities and Challenges in Building Patient-Researcher Collaborations to Accelerate Parkinson's Clinical Research
Benzi M. Kluger, M.D., M.S., Director, Movement Disorders Center and Associate Professor, Neurology, University of Colorado, and Diane Cook, PDF Research Advocate and member, PDF People with Parkinson's Advisory Council, Denver, CO

Self-Reported Benefits of Participation in a Singing Group (Tremble Clefs) in Parkinson Disease
Stephanie Lessig, M.D., Associate Professor, Department of Neurosciences, University of California, San Diego, School of Medicine and Chief of Neurology, Veterans Affairs Medical Center, and Thelma Balbes, M.A., PDF Research Advocate, Carlsbad, CA

Tele-Neurological Assessments of Patients with Parkinson's Disease 
Christina Vaughan, M.D., M.H.S., Assistant Professor of Neurology, Medical University of South Carolina, and Jay Phillips and Marilyn Phillips, P.T., PDF Research Advocates, Charleston, SC

About Parkinson's Disease 
Parkinson's disease is a progressive neurological disorder that affects nearly one million people in the United States and seven to 10 million people worldwide.  Although promising research is being conducted, there is currently no cure for Parkinson's disease.

About PDF Research 
Central to the mission of the Parkinson's Disease Foundation (PDF) is our commitment to funding research that is focused on three results: solving, treating and ending Parkinson's disease.  In the calendar year 2014, PDF will contribute a total of $5 million towards Parkinson's disease research programs, funding three research centers, 40 scientific projects and 10 clinical fellows around the world.  A full list of this year's research projects is available on the PDF website at www.pdf.org/results_funded.    

About the Parkinson's Disease Foundation (PDF)
The Parkinson's Disease Foundation® (PDF®) is a leading national presence in Parkinson's disease research, education and public advocacy.  We are working for the nearly one million people in the US who live with Parkinson's disease by funding promising scientific research while supporting people living with Parkinson's disease through educational programs and services.  Since its founding in 1957, PDF has dedicated over $100 million to fund the work of leading scientists throughout the world and over $42 million to support national education and advocacy programs.

Logo - http://photos.prnewswire.com/prnh/20111101/DC97663LOGO

SOURCE Parkinson's Disease Foundation

More Stories By PR Newswire

Copyright © 2007 PR Newswire. All rights reserved. Republication or redistribution of PRNewswire content is expressly prohibited without the prior written consent of PRNewswire. PRNewswire shall not be liable for any errors or delays in the content, or for any actions taken in reliance thereon.

Latest Stories
20th Cloud Expo, taking place June 6-8, 2017, at the Javits Center in New York City, NY, will feature technical sessions from a rock star conference faculty and the leading industry players in the world. Cloud computing is now being embraced by a majority of enterprises of all sizes. Yesterday's debate about public vs. private has transformed into the reality of hybrid cloud: a recent survey shows that 74% of enterprises have a hybrid cloud strategy.
In the next five to ten years, millions, if not billions of things will become smarter. This smartness goes beyond connected things in our homes like the fridge, thermostat and fancy lighting, and into heavily regulated industries including aerospace, pharmaceutical/medical devices and energy. “Smartness” will embed itself within individual products that are part of our daily lives. We will engage with smart products - learning from them, informing them, and communicating with them. Smart produc...
Internet of @ThingsExpo, taking place June 6-8, 2017 at the Javits Center in New York City, New York, is co-located with the 20th International Cloud Expo and will feature technical sessions from a rock star conference faculty and the leading industry players in the world. @ThingsExpo New York Call for Papers is now open.
Providing the needed data for application development and testing is a huge headache for most organizations. The problems are often the same across companies - speed, quality, cost, and control. Provisioning data can take days or weeks, every time a refresh is required. Using dummy data leads to quality problems. Creating physical copies of large data sets and sending them to distributed teams of developers eats up expensive storage and bandwidth resources. And, all of these copies proliferating...
SYS-CON Events announced today that Catchpoint, a leading digital experience intelligence company, has been named “Silver Sponsor” of SYS-CON's 20th International Cloud Expo®, which will take place on June 6-8, 2017, at the Javits Center in New York City, NY. Catchpoint Systems is a leading Digital Performance Analytics company that provides unparalleled insight into your customer-critical services to help you consistently deliver an amazing customer experience. Designed for digital business, C...
SYS-CON Events announced today that Catchpoint Systems, Inc., a provider of innovative web and infrastructure monitoring solutions, has been named “Silver Sponsor” of SYS-CON's DevOps Summit at 18th Cloud Expo New York, which will take place June 7-9, 2016, at the Javits Center in New York City, NY. Catchpoint is a leading Digital Performance Analytics company that provides unparalleled insight into customer-critical services to help consistently deliver an amazing customer experience. Designed ...
More and more brands have jumped on the IoT bandwagon. We have an excess of wearables – activity trackers, smartwatches, smart glasses and sneakers, and more that track seemingly endless datapoints. However, most consumers have no idea what “IoT” means. Creating more wearables that track data shouldn't be the aim of brands; delivering meaningful, tangible relevance to their users should be. We're in a period in which the IoT pendulum is still swinging. Initially, it swung toward "smart for smart...
“DevOps is really about the business. The business is under pressure today, competitively in the marketplace to respond to the expectations of the customer. The business is driving IT and the problem is that IT isn't responding fast enough," explained Mark Levy, Senior Product Marketing Manager at Serena Software, in this SYS-CON.tv interview at DevOps Summit, held Nov 4–6, 2014, at the Santa Clara Convention Center in Santa Clara, CA.
WebRTC sits at the intersection between VoIP and the Web. As such, it poses some interesting challenges for those developing services on top of it, but also for those who need to test and monitor these services. In his session at WebRTC Summit, Tsahi Levent-Levi, co-founder of testRTC, reviewed the various challenges posed by WebRTC when it comes to testing and monitoring and on ways to overcome them.
In their general session at 16th Cloud Expo, Michael Piccininni, Global Account Manager - Cloud SP at EMC Corporation, and Mike Dietze, Regional Director at Windstream Hosted Solutions, reviewed next generation cloud services, including the Windstream-EMC Tier Storage solutions, and discussed how to increase efficiencies, improve service delivery and enhance corporate cloud solution development. Michael Piccininni is Global Account Manager – Cloud SP at EMC Corporation. He has been engaged in t...
The emerging Internet of Everything creates tremendous new opportunities for customer engagement and business model innovation. However, enterprises must overcome a number of critical challenges to bring these new solutions to market. In his session at @ThingsExpo, Michael Martin, CTO/CIO at nfrastructure, outlined these key challenges and recommended approaches for overcoming them to achieve speed and agility in the design, development and implementation of Internet of Everything solutions with...
Cloud Expo, Inc. has announced today that Andi Mann returns to 'DevOps at Cloud Expo 2017' as Conference Chair The @DevOpsSummit at Cloud Expo will take place on June 6-8, 2017, at the Javits Center in New York City, NY. "DevOps is set to be one of the most profound disruptions to hit IT in decades," said Andi Mann. "It is a natural extension of cloud computing, and I have seen both firsthand and in independent research the fantastic results DevOps delivers. So I am excited to help the great t...
Every successful software product evolves from an idea to an enterprise system. Notably, the same way is passed by the product owner's company. In his session at 20th Cloud Expo, Oleg Lola, CEO of MobiDev, will provide a generalized overview of the evolution of a software product, the product owner, the needs that arise at various stages of this process, and the value brought by a software development partner to the product owner as a response to these needs.
In 2014, Amazon announced a new form of compute called Lambda. We didn't know it at the time, but this represented a fundamental shift in what we expect from cloud computing. Now, all of the major cloud computing vendors want to take part in this disruptive technology. In his session at 20th Cloud Expo, John Jelinek IV, a web developer at Linux Academy, will discuss why major players like AWS, Microsoft Azure, IBM Bluemix, and Google Cloud Platform are all trying to sidestep VMs and containers...
SYS-CON Events announced today that MobiDev, a client-oriented software development company, will exhibit at SYS-CON's 20th International Cloud Expo®, which will take place June 6-8, 2017, at the Javits Center in New York City, NY, and the 21st International Cloud Expo®, which will take place October 31-November 2, 2017, at the Santa Clara Convention Center in Santa Clara, CA. MobiDev is a software company that develops and delivers turn-key mobile apps, websites, web services, and complex softw...