Welcome!

News Feed Item

Scientists and Headlining Entertainers Unite to Find a Cure for Scleroderma

An evening of Cool Comedy, Live Music and Haute Cuisine to Benefit the Scleroderma Research Foundation

SAN FRANCISCO, April 18, 2014 /PRNewswire-USNewswire/ -- Thanks to an eclectic and unique gathering of gifted and creative minds, new treatments for a rare autoimmune disease may be just a few short years away…

Comedian Bob Saget will host the 31st Cool Comedy - Hot Cuisine, a benefit for the Scleroderma Research Foundation on April 23, 2014 in San Francisco.

Comedian Bob Saget, author of the new book Dirty Daddy will host an evening of headlining music, comedy, food and wine at Cool Comedy – Hot Cuisine on Wednesday, April 23 in the Grand Ballroom of San Francisco's historic Palace Hotel. The event is a benefit for the Scleroderma Research Foundation (SRF), America's leading nonprofit investor in medical research to find a cure for the autoimmune disease scleroderma.

The word "scleroderma" literally means "hard skin," but the disease is much more, often affecting the heart, lungs, kidneys and other internal organs with life-threatening consequences. In some cases, the joints and muscles are affected, resulting in severe pain and restricted mobility. Vascular damage due to scleroderma can result in the loss of fingers, toes and entire limbs.

Saget, an SRF Board Member who lost his sister to scleroderma, will be joined in the fundraising effort by San Francisco radio personality Don Bleu, legendary comedians Dana Carvey and Jeff Garlin, and the Grammy® Award-winning band, Train.

Cool Comedy – Hot Cuisine is presented by Actelion, a Swiss-based pharmaceutical company specializing in products to help patients with pulmonary arterial hypertension (PAH), one of the most deadly complications of scleroderma. The event has raised more than $14 million to strengthen and accelerate the SRF's collaborative research program.

SRF Board Chairman Luke Evnin, Ph.D., a scleroderma patient and managing partner at MPM Capital, a private equity firm that has invested more than $2.8 billion in life sciences, explains what the SRF's cooperative approach to research is making possible for talented scientists from leading institutions across the nation and around the world: "Our partnerships are helping to develop an understanding of how scleroderma begins, how it progresses and what can be done to slow, halt or reverse the disease process. "

"Cool Comedy – Hot Cuisine is the single most successful fundraising and awareness building event for scleroderma," says Evnin.

The "Hot Cuisine" for the evening will be prepared by celebrity chefs/restaurateurs Susan Feniger, also an SRF Board Member, and Mary Sue Milliken (Food Network's Too Hot Tamales and both Bravo Network Top Chef Masters). A five-course menu will feature popular dishes from their Latin inspired Border Grill Restaurants.

"It has been an incredible year for scleroderma research and this event will ensure that progress continues for the benefit of patients everywhere," says Feniger. "I think we've given credibility to the old adage that laughter is the best medicine. And we've certainly shown that healthy doses of great food, wine and music are the perfect supplemental prescription."

The success of Cool Comedy – Hot Cuisine events held in San Francisco, Los Angeles and New York (an inaugural Las Vegas event is scheduled for June 5, 2014) has raised considerable awareness for scleroderma and enabled the SRF to fund innovative research that is expected to bring new treatments that will prolong as well as improve quality of life for patients.

Since its founding in 1987, the SRF has brought some of the brightest minds from academia and industry together in an effort to unravel the mysteries of this life-threatening illness that is estimated to affect one in every 4,000 Americans.

A scientific advisory board comprised of such luminaries as Dr. Bruce Alberts, former President of the National Academy of Sciences; emeritus member Dr. Susan Desmond-Hellmann, Chief Executive Officer of the Bill & Melinda Gates Foundation; Dr. David Botstein, whose genetic mapping skills paved the way for the Human Genome Project, and several others is representative of the team of extraordinary scientists who each contribute their expertise to help shape the Foundation's research program.

The SRF funded two breakthrough discoveries with results published last year in Nature and  Science; one linking scleroderma to cancer (and possibly opening the door to a broad new array of treatment possibilities) and the other showing that the disease's signature fibrosis—or scarring—can not only be stopped, but actually reversed in a laboratory setting.

The San Francisco Cool Comedy – Hot Cuisine event on April 23 will include a silent auction, cocktail reception, dinner and headlining entertainment. A live auction will feature unique experiences to include premium access to the 2014 Victoria's Secret Fashion Show and after-party in London and access to next month's season 13 American Idol finale and after-party. First-class airfare is provided by event sponsor Delta Air Lines. Other packages tied to the "Hot Cuisine" theme include celebrity chef internships and an in-home dinner prepared by Bravo Network's Top Chef Masters Traci Des Jardins and Mary Sue Milliken.

Tickets for Cool Comedy – Hot Cuisine start at $500 and all contributions benefit the Scleroderma Research Foundation. Advance reservations are required. For more information, call (800) 441-CURE or visit www.sclerodermaRESEARCH.org.

More about Scleroderma:

Scleroderma has the highest mortality rate of all rheumatic diseases. Its symptoms and severity can vary greatly from one person to another and the course of the disease is often unpredictable. Women are disproportionately affected by scleroderma (representing four out of five patients), with the disease usually striking between the ages of 30 and 50; however, children and men of all ages and across all ethnic boundaries can also be affected. Ninety percent of scleroderma patients first experience Raynaud's phenomenon—most visibly characterized by extreme sensitivity to cold with the fingers and toes blanching in color from red, to white, to blue.

There is currently no way to prevent scleroderma and there is no cure. Treatments are available for some but not all of the most serious complications and many have serious side effects. The Scleroderma Research Foundation is at the forefront of medical research aimed to change this and their continued success is entirely dependent upon charitable gifts from individuals and corporations.

Dr. Fredrick Wigley, Director of The Johns Hopkins Scleroderma Center, one of the largest and most highly regarded scleroderma clinics in the world, says in the Foundation's Project Scleroderma video, "the Scleroderma Research Foundation has made an incredible difference (for patients), and I am absolutely convinced that, with the right support, there is nothing that can't be done."

Photo - http://photos.prnewswire.com/prnh/20140418/76538 

SOURCE Scleroderma Research Foundation

More Stories By PR Newswire

Copyright © 2007 PR Newswire. All rights reserved. Republication or redistribution of PRNewswire content is expressly prohibited without the prior written consent of PRNewswire. PRNewswire shall not be liable for any errors or delays in the content, or for any actions taken in reliance thereon.

Latest Stories
When it comes to cloud computing, the ability to turn massive amounts of compute cores on and off on demand sounds attractive to IT staff, who need to manage peaks and valleys in user activity. With cloud bursting, the majority of the data can stay on premises while tapping into compute from public cloud providers, reducing risk and minimizing need to move large files. In his session at 18th Cloud Expo, Scott Jeschonek, Director of Product Management at Avere Systems, discussed the IT and busin...
Data is the fuel that drives the machine learning algorithmic engines and ultimately provides the business value. In his session at Cloud Expo, Ed Featherston, a director and senior enterprise architect at Collaborative Consulting, discussed the key considerations around quality, volume, timeliness, and pedigree that must be dealt with in order to properly fuel that engine.
Successful digital transformation requires new organizational competencies and capabilities. Research tells us that the biggest impediment to successful transformation is human; consequently, the biggest enabler is a properly skilled and empowered workforce. In the digital age, new individual and collective competencies are required. In his session at 19th Cloud Expo, Bob Newhouse, CEO and founder of Agilitiv, drew together recent research and lessons learned from emerging and established compa...
Everyone knows that truly innovative companies learn as they go along, pushing boundaries in response to market changes and demands. What's more of a mystery is how to balance innovation on a fresh platform built from scratch with the legacy tech stack, product suite and customers that continue to serve as the business' foundation. In his General Session at 19th Cloud Expo, Michael Chambliss, Head of Engineering at ReadyTalk, discussed why and how ReadyTalk diverted from healthy revenue and mor...
"Coalfire is a cyber-risk, security and compliance assessment and advisory services firm. We do a lot of work with the cloud service provider community," explained Ryan McGowan, Vice President, Sales (West) at Coalfire Systems, Inc., in this SYS-CON.tv interview at 19th Cloud Expo, held November 1-3, 2016, at the Santa Clara Convention Center in Santa Clara, CA.
Effectively SMBs and government programs must address compounded regulatory compliance requirements. The most recent are Controlled Unclassified Information and the EU's GDPR have Board Level implications. Managing sensitive data protection will likely result in acquisition criteria, demonstration requests and new requirements. Developers, as part of the pre-planning process and the associated supply chain, could benefit from updating their code libraries and design by incorporating changes. In...
CloudJumper, a Workspace as a Service (WaaS) platform innovator for agile business IT, has been recognized with the Customer Value Leadership Award for its nWorkSpace platform by Frost & Sullivan. The company was also featured in a new report(1) by the industry research firm titled, “Desktop-as-a-Service Buyer’s Guide, 2016,” which provides a comprehensive comparison of DaaS providers, including CloudJumper, Amazon, VMware, and Microsoft.
"We are an all-flash array storage provider but our focus has been on VM-aware storage specifically for virtualized applications," stated Dhiraj Sehgal of Tintri in this SYS-CON.tv interview at 19th Cloud Expo, held November 1-3, 2016, at the Santa Clara Convention Center in Santa Clara, CA.
The 20th International Cloud Expo has announced that its Call for Papers is open. Cloud Expo, to be held June 6-8, 2017, at the Javits Center in New York City, brings together Cloud Computing, Big Data, Internet of Things, DevOps, Containers, Microservices and WebRTC to one location. With cloud computing driving a higher percentage of enterprise IT budgets every year, it becomes increasingly important to plant your flag in this fast-expanding business opportunity. Submit your speaking proposal ...
We are always online. We access our data, our finances, work, and various services on the Internet. But we live in a congested world of information in which the roads were built two decades ago. The quest for better, faster Internet routing has been around for a decade, but nobody solved this problem. We’ve seen band-aid approaches like CDNs that attack a niche's slice of static content part of the Internet, but that’s it. It does not address the dynamic services-based Internet of today. It does...
You have great SaaS business app ideas. You want to turn your idea quickly into a functional and engaging proof of concept. You need to be able to modify it to meet customers' needs, and you need to deliver a complete and secure SaaS application. How could you achieve all the above and yet avoid unforeseen IT requirements that add unnecessary cost and complexity? You also want your app to be responsive in any device at any time. In his session at 19th Cloud Expo, Mark Allen, General Manager of...
Bert Loomis was a visionary. This general session will highlight how Bert Loomis and people like him inspire us to build great things with small inventions. In their general session at 19th Cloud Expo, Harold Hannon, Architect at IBM Bluemix, and Michael O'Neill, Strategic Business Development at Nvidia, discussed the accelerating pace of AI development and how IBM Cloud and NVIDIA are partnering to bring AI capabilities to "every day," on-demand. They also reviewed two "free infrastructure" pr...
Major trends and emerging technologies – from virtual reality and IoT, to Big Data and algorithms – are helping organizations innovate in the digital era. However, to create real business value, IT must think beyond the ‘what’ of digital transformation to the ‘how’ to harness emerging trends, innovation and disruption. Architecture is the key that underpins and ties all these efforts together. In the digital age, it’s important to invest in architecture, extend the enterprise footprint to the cl...
Connected devices and the industrial internet are growing exponentially every year with Cisco expecting 50 billion devices to be in operation by 2020. In this period of growth, location-based insights are becoming invaluable to many businesses as they adopt new connected technologies. Knowing when and where these devices connect from is critical for a number of scenarios in supply chain management, disaster management, emergency response, M2M, location marketing and more. In his session at @Th...
"Dice has been around for the last 20 years. We have been helping tech professionals find new jobs and career opportunities," explained Manish Dixit, VP of Product and Engineering at Dice, in this SYS-CON.tv interview at 19th Cloud Expo, held November 1-3, 2016, at the Santa Clara Convention Center in Santa Clara, CA.