Welcome!

News Feed Item

Scientists and Headlining Entertainers Unite to Find a Cure for Scleroderma

An evening of Cool Comedy, Live Music and Haute Cuisine to Benefit the Scleroderma Research Foundation

SAN FRANCISCO, April 18, 2014 /PRNewswire-USNewswire/ -- Thanks to an eclectic and unique gathering of gifted and creative minds, new treatments for a rare autoimmune disease may be just a few short years away…

Comedian Bob Saget will host the 31st Cool Comedy - Hot Cuisine, a benefit for the Scleroderma Research Foundation on April 23, 2014 in San Francisco.

Comedian Bob Saget, author of the new book Dirty Daddy will host an evening of headlining music, comedy, food and wine at Cool Comedy – Hot Cuisine on Wednesday, April 23 in the Grand Ballroom of San Francisco's historic Palace Hotel. The event is a benefit for the Scleroderma Research Foundation (SRF), America's leading nonprofit investor in medical research to find a cure for the autoimmune disease scleroderma.

The word "scleroderma" literally means "hard skin," but the disease is much more, often affecting the heart, lungs, kidneys and other internal organs with life-threatening consequences. In some cases, the joints and muscles are affected, resulting in severe pain and restricted mobility. Vascular damage due to scleroderma can result in the loss of fingers, toes and entire limbs.

Saget, an SRF Board Member who lost his sister to scleroderma, will be joined in the fundraising effort by San Francisco radio personality Don Bleu, legendary comedians Dana Carvey and Jeff Garlin, and the Grammy® Award-winning band, Train.

Cool Comedy – Hot Cuisine is presented by Actelion, a Swiss-based pharmaceutical company specializing in products to help patients with pulmonary arterial hypertension (PAH), one of the most deadly complications of scleroderma. The event has raised more than $14 million to strengthen and accelerate the SRF's collaborative research program.

SRF Board Chairman Luke Evnin, Ph.D., a scleroderma patient and managing partner at MPM Capital, a private equity firm that has invested more than $2.8 billion in life sciences, explains what the SRF's cooperative approach to research is making possible for talented scientists from leading institutions across the nation and around the world: "Our partnerships are helping to develop an understanding of how scleroderma begins, how it progresses and what can be done to slow, halt or reverse the disease process. "

"Cool Comedy – Hot Cuisine is the single most successful fundraising and awareness building event for scleroderma," says Evnin.

The "Hot Cuisine" for the evening will be prepared by celebrity chefs/restaurateurs Susan Feniger, also an SRF Board Member, and Mary Sue Milliken (Food Network's Too Hot Tamales and both Bravo Network Top Chef Masters). A five-course menu will feature popular dishes from their Latin inspired Border Grill Restaurants.

"It has been an incredible year for scleroderma research and this event will ensure that progress continues for the benefit of patients everywhere," says Feniger. "I think we've given credibility to the old adage that laughter is the best medicine. And we've certainly shown that healthy doses of great food, wine and music are the perfect supplemental prescription."

The success of Cool Comedy – Hot Cuisine events held in San Francisco, Los Angeles and New York (an inaugural Las Vegas event is scheduled for June 5, 2014) has raised considerable awareness for scleroderma and enabled the SRF to fund innovative research that is expected to bring new treatments that will prolong as well as improve quality of life for patients.

Since its founding in 1987, the SRF has brought some of the brightest minds from academia and industry together in an effort to unravel the mysteries of this life-threatening illness that is estimated to affect one in every 4,000 Americans.

A scientific advisory board comprised of such luminaries as Dr. Bruce Alberts, former President of the National Academy of Sciences; emeritus member Dr. Susan Desmond-Hellmann, Chief Executive Officer of the Bill & Melinda Gates Foundation; Dr. David Botstein, whose genetic mapping skills paved the way for the Human Genome Project, and several others is representative of the team of extraordinary scientists who each contribute their expertise to help shape the Foundation's research program.

The SRF funded two breakthrough discoveries with results published last year in Nature and  Science; one linking scleroderma to cancer (and possibly opening the door to a broad new array of treatment possibilities) and the other showing that the disease's signature fibrosis—or scarring—can not only be stopped, but actually reversed in a laboratory setting.

The San Francisco Cool Comedy – Hot Cuisine event on April 23 will include a silent auction, cocktail reception, dinner and headlining entertainment. A live auction will feature unique experiences to include premium access to the 2014 Victoria's Secret Fashion Show and after-party in London and access to next month's season 13 American Idol finale and after-party. First-class airfare is provided by event sponsor Delta Air Lines. Other packages tied to the "Hot Cuisine" theme include celebrity chef internships and an in-home dinner prepared by Bravo Network's Top Chef Masters Traci Des Jardins and Mary Sue Milliken.

Tickets for Cool Comedy – Hot Cuisine start at $500 and all contributions benefit the Scleroderma Research Foundation. Advance reservations are required. For more information, call (800) 441-CURE or visit www.sclerodermaRESEARCH.org.

More about Scleroderma:

Scleroderma has the highest mortality rate of all rheumatic diseases. Its symptoms and severity can vary greatly from one person to another and the course of the disease is often unpredictable. Women are disproportionately affected by scleroderma (representing four out of five patients), with the disease usually striking between the ages of 30 and 50; however, children and men of all ages and across all ethnic boundaries can also be affected. Ninety percent of scleroderma patients first experience Raynaud's phenomenon—most visibly characterized by extreme sensitivity to cold with the fingers and toes blanching in color from red, to white, to blue.

There is currently no way to prevent scleroderma and there is no cure. Treatments are available for some but not all of the most serious complications and many have serious side effects. The Scleroderma Research Foundation is at the forefront of medical research aimed to change this and their continued success is entirely dependent upon charitable gifts from individuals and corporations.

Dr. Fredrick Wigley, Director of The Johns Hopkins Scleroderma Center, one of the largest and most highly regarded scleroderma clinics in the world, says in the Foundation's Project Scleroderma video, "the Scleroderma Research Foundation has made an incredible difference (for patients), and I am absolutely convinced that, with the right support, there is nothing that can't be done."

Photo - http://photos.prnewswire.com/prnh/20140418/76538 

SOURCE Scleroderma Research Foundation

More Stories By PR Newswire

Copyright © 2007 PR Newswire. All rights reserved. Republication or redistribution of PRNewswire content is expressly prohibited without the prior written consent of PRNewswire. PRNewswire shall not be liable for any errors or delays in the content, or for any actions taken in reliance thereon.

Latest Stories
Amazon started as an online bookseller 20 years ago. Since then, it has evolved into a technology juggernaut that has disrupted multiple markets and industries and touches many aspects of our lives. It is a relentless technology and business model innovator driving disruption throughout numerous ecosystems. Amazon’s AWS revenues alone are approaching $16B a year making it one of the largest IT companies in the world. With dominant offerings in Cloud, IoT, eCommerce, Big Data, AI, Digital Assista...
Existing Big Data solutions are mainly focused on the discovery and analysis of data. The solutions are scalable and highly available but tedious when swapping in and swapping out occurs in disarray and thrashing takes place. The resolution for thrashing through machine learning algorithms and support nomenclature is through simple techniques. Organizations that have been collecting large customer data are increasingly seeing the need to use the data for swapping in and out and thrashing occurs ...
While some vendors scramble to create and sell you a fancy solution for monitoring your spanking new Amazon Lambdas, hear how you can do it on the cheap using just built-in Java APIs yourself. By exploiting a little-known fact that Lambdas aren’t exactly single threaded, you can effectively identify hot spots in your serverless code. In his session at 20th Cloud Expo, David Martin, Principal Product Owner at CA Technologies, will give a live demonstration and code walkthrough, showing how to ov...
New competitors, disruptive technologies, and growing expectations are pushing every business to both adopt and deliver new digital services. This ‘Digital Transformation’ demands rapid delivery and continuous iteration of new competitive services via multiple channels, which in turn demands new service delivery techniques – including DevOps. In this power panel at @DevOpsSummit 20th Cloud Expo, moderated by DevOps Conference Co-Chair Andi Mann, panelists will examine how DevOps helps to meet th...
SYS-CON Events announced today that Outscale, a global pure play Infrastructure as a Service provider and strategic partner of Dassault Systèmes, will exhibit at SYS-CON's 20th International Cloud Expo®, which will take place on June 6-8, 2017, at the Javits Center in New York City, NY. Founded in 2010, Outscale simplifies infrastructure complexities and boosts the business agility of its customers. Outscale delivers a secure, reliable and industrial strength solution for its customers, which in...
SYS-CON Events announced today that A&I Solutions has been named “Bronze Sponsor” of SYS-CON's 20th International Cloud Expo®, which will take place on June 6-8, 2017, at the Javits Center in New York City, NY. Founded in 1999, A&I Solutions is a leading information technology (IT) software and services provider focusing on best-in-class enterprise solutions. By partnering with industry leaders in technology, A&I assures customers high performance levels across all IT environments including: mai...
SYS-CON Events announced today that Cloudistics, an on-premises cloud computing company, has been named “Bronze Sponsor” of SYS-CON's 20th International Cloud Expo®, which will take place on June 6-8, 2017, at the Javits Center in New York City, NY. Cloudistics delivers a complete public cloud experience with composable on-premises infrastructures to medium and large enterprises. Its software-defined technology natively converges network, storage, compute, virtualization, and management into a ...
In order to meet the rapidly changing demands of today’s customers, companies are continually forced to redefine their business strategies in order to meet these needs, stay relevant and continue to see profitable growth. IoT deployment and development is integral in this transformation, and today businesses are increasingly seeing the value of investing their resources into IoT deployments. These technologies are able increase ROI through projects such as connecting supply chains or enabling sm...
Every successful software product evolves from an idea to an enterprise system. Notably, the same way is passed by the product owner's company. In his session at 20th Cloud Expo, Oleg Lola, CEO of MobiDev, will provide a generalized overview of the evolution of a software product, the product owner, the needs that arise at various stages of this process, and the value brought by a software development partner to the product owner as a response to these needs.
SYS-CON Events announced today that EARP will exhibit at SYS-CON's 20th International Cloud Expo®, which will take place on June 6-8, 2017, at the Javits Center in New York City, NY. "We are a software house, so we perfectly understand challenges that other software houses face in their projects. We can augment a team, that will work with the same standards and processes as our partners' internal teams. Our teams will deliver the same quality within the required time and budget just as our partn...
SYS-CON Events announced today that Interoute, owner-operator of one of Europe's largest networks and a global cloud services platform, has been named “Bronze Sponsor” of SYS-CON's 20th Cloud Expo, which will take place on June 6-8, 2017 at the Javits Center in New York, New York. Interoute is the owner-operator of one of Europe's largest networks and a global cloud services platform which encompasses 12 data centers, 14 virtual data centers and 31 colocation centers, with connections to 195 add...
SYS-CON Events announced today that Tappest will exhibit MooseFS at SYS-CON's 20th International Cloud Expo®, which will take place on June 6-8, 2017, at the Javits Center in New York City, NY. MooseFS is a breakthrough concept in the storage industry. It allows you to secure stored data with either duplication or erasure coding using any server. The newest – 4.0 version of the software enables users to maintain the redundancy level with even 50% less hard drive space required. The software func...
SYS-CON Events announced today that delaPlex will exhibit at SYS-CON's @ThingsExpo, which will take place on June 6-8, 2017, at the Javits Center in New York City, NY. delaPlex pioneered Software Development as a Service (SDaaS), which provides scalable resources to build, test, and deploy software. It’s a fast and more reliable way to develop a new product or expand your in-house team.
Most technology leaders, contemporary and from the hardware era, are reshaping their businesses to do software in the hope of capturing value in IoT. Although IoT is relatively new in the market, it has already gone through many promotional terms such as IoE, IoX, SDX, Edge/Fog, Mist Compute, etc. Ultimately, irrespective of the name, it is about deriving value from independent software assets participating in an ecosystem as one comprehensive solution.
SYS-CON Events announced today that Systena America will exhibit at SYS-CON's 20th International Cloud Expo®, which will take place on June 6-8, 2017, at the Javits Center in New York City, NY. Systena Group has been in business for various software development and verification in Japan, US, ASEAN, and China by utilizing the knowledge we gained from all types of device development for various industries including smartphones (Android/iOS), wireless communication, security technology and IoT serv...