|By Business Wire||
|June 6, 2014 01:00 PM EDT||
A young father who blogs about his fight with stage 4 melanoma and a mural artist who struggled to access her cancer-stricken husband’s medical records will share their unique perspectives with the professionals responsible for the research, development and regulation of drug therapies at the DIA 2014 50th Annual Meeting.
T.J. Sharpe, of Fort Lauderdale, Fla., and Regina Holliday, of Grantsville, Md., are among the patient advocates with a one-of-a-kind opportunity to present with drug industry leaders at the DIA Annual Meeting from June 15 to 19 at the San Diego Convention Center. They will discuss their experiences with urgent issues facing patients, such as enrollment in clinical trials and access to electronic medical records.
“Each patient advocate presenting at the meeting has a compelling story of determination and resilience, and there is no other meeting in the world that joins these forces together to accelerate health care solutions,” said Barbara L. Kunz, DIA global chief executive. “A key focus of DIA is to put the patient first when facilitating vital collaboration between industry, research and regulatory arenas.”
Philly.com’s “Patient #1” blogger Sharpe, who was the first patient in the world to undergo an experimental sequence of treatments to fight his cancer, will be sharing his experience in clinical trials when he speaks at a session on “The Patient Point-of-View: An Unrehearsed but Revealing Conversation to Rectify Patient Enrollment,” scheduled for June 18 at 10:30 a.m. Presenting at the DIA Annual Meeting is an opportunity for Sharpe to speak directly with those who spearhead research that can save his life.
“I am the luckiest guy in the world with cancer: I was able to get into not one, but two clinical trials to study milestone drugs,” Sharpe said. “Speaking at the DIA Annual Meeting allows me to share my story with an audience of professionals who make treatment a reality.”
Holliday will highlight a new initiative, the Blue Button Project, which will pioneer patients’ access to their electronic medical data, helping them track their progress and providing them the ability to share their information among specialized care teams during treatment. She will share her story of facing hurdles to access her husband’s medical data after he was diagnosed with inoperable kidney cancer — data that Holliday says could have changed the course of his treatment. The “Enabling Participants’ Access to the Electronic Clinical Trial Data: The Blue Button Project” session will be held on June 17 at 1:30 p.m.
“If we had been able to fully access my husband’s data, we could have changed his treatment — he might be in remission, or we could have made informed decisions about surgery or considered hospice care,” said Holliday, whose husband died in June 2009, less than 12 weeks after he was diagnosed. “I want to share my story with professionals at the DIA Annual Meeting who are dedicated to learn from us and work with us to drive treatment for those like my husband.”
On June 16 at 4 p.m., Holliday will host The Walking Gallery, bringing patient stories to life through narrative paintings on jackets worn by patient advocates, survivors of disease, caregivers and others who have lost loved ones to illness.
Other patient advocates who will be presenting at the annual meeting include:
- Kristin Voorhees, a celiac disease patient and health care relations manager for the National Foundation for Celiac Awareness, who will lead the “Filling the Gaps and Speeding Up Results: What an Educated, Sophisticated Patient Population Can Do for You” session on June 18 at 3:30 p.m.
- Bonnie J. Addario, a lung cancer survivor and founder of the Addario Lung Cancer Foundation, who will present at the “Bringing the Patient Voice to Clinical Development” forum on June 16 at 8:30 a.m.
ABOUT DIA: DIA is the global connector in the life sciences product development process. Our association of more than 18,000 members builds productive relationships by bringing together regulators, innovators and influencers to exchange knowledge and collaborate in a neutral setting. DIA’s network creates unparalleled opportunities for the exchange of knowledge and has the interdisciplinary experience to prepare for future developments. DIA is an independent, nonprofit organization with its global center in Washington, D.C., USA, and regional offices covering North and South America (Horsham, Pa., USA); Europe, North Africa and the Middle East (Basel, Switzerland); and Japan (Tokyo), India (Mumbai) and China (Beijing). For more information, visit www.diahome.org.
ABOUT DIA’s 2014 50th ANNUAL MEETING: Celebrate the Past – Invent the Future is the largest multidisciplinary event that brings together a community of life sciences professionals at all levels and across all disciplines involved in the discovery, development and life cycle management of medical products. The meeting aims to foster innovation that will lead to the development of safe and effective medical products and therapies for patients. For more information, visit www.diahome.org/dia2014.
In his keynote at @ThingsExpo, Chris Matthieu, Director of IoT Engineering at Citrix and co-founder and CTO of Octoblu, focused on building an IoT platform and company. He provided a behind-the-scenes look at Octoblu’s platform, business, and pivots along the way (including the Citrix acquisition of Octoblu).
Mar. 28, 2017 02:00 PM EDT Reads: 14,219
SYS-CON Events announced today that Auditwerx will exhibit at SYS-CON's 20th International Cloud Expo®, which will take place on June 6-8, 2017, at the Javits Center in New York City, NY. Auditwerx specializes in SOC 1, SOC 2, and SOC 3 attestation services throughout the U.S. and Canada. As a division of Carr, Riggs & Ingram (CRI), one of the top 20 largest CPA firms nationally, you can expect the resources, skills, and experience of a much larger firm combined with the accessibility and atten...
Mar. 28, 2017 01:31 PM EDT
SYS-CON Events announced today that Loom Systems will exhibit at SYS-CON's 20th International Cloud Expo®, which will take place on June 6-8, 2017, at the Javits Center in New York City, NY. Founded in 2015, Loom Systems delivers an advanced AI solution to predict and prevent problems in the digital business. Loom stands alone in the industry as an AI analysis platform requiring no prior math knowledge from operators, leveraging the existing staff to succeed in the digital era. With offices in S...
Mar. 28, 2017 01:15 PM EDT Reads: 1,575
What if you could build a web application that could support true web-scale traffic without having to ever provision or manage a single server? Sounds magical, and it is! In his session at 20th Cloud Expo, Chris Munns, Senior Developer Advocate for Serverless Applications at Amazon Web Services, will show how to build a serverless website that scales automatically using services like AWS Lambda, Amazon API Gateway, and Amazon S3. We will review several frameworks that can help you build serverle...
Mar. 28, 2017 01:15 PM EDT Reads: 2,166
SYS-CON Events announced today that HTBase will exhibit at SYS-CON's 20th International Cloud Expo®, which will take place on June 6-8, 2017, at the Javits Center in New York City, NY. HTBase (Gartner 2016 Cool Vendor) delivers a Composable IT infrastructure solution architected for agility and increased efficiency. It turns compute, storage, and fabric into fluid pools of resources that are easily composed and re-composed to meet each application’s needs. With HTBase, companies can quickly prov...
Mar. 28, 2017 12:45 PM EDT Reads: 3,101
SYS-CON Events announced today that Cloud Academy will exhibit at SYS-CON's 20th International Cloud Expo®, which will take place on June 6-8, 2017, at the Javits Center in New York City, NY. Cloud Academy is the industry’s most innovative, vendor-neutral cloud technology training platform. Cloud Academy provides continuous learning solutions for individuals and enterprise teams for Amazon Web Services, Microsoft Azure, Google Cloud Platform, and the most popular cloud computing technologies. Ge...
Mar. 28, 2017 11:30 AM EDT Reads: 4,647
SYS-CON Events announced today that T-Mobile will exhibit at SYS-CON's 20th International Cloud Expo®, which will take place on June 6-8, 2017, at the Javits Center in New York City, NY. As America's Un-carrier, T-Mobile US, Inc., is redefining the way consumers and businesses buy wireless services through leading product and service innovation. The Company's advanced nationwide 4G LTE network delivers outstanding wireless experiences to 67.4 million customers who are unwilling to compromise on ...
Mar. 28, 2017 11:30 AM EDT Reads: 2,454
MongoDB Atlas leverages VPC peering for AWS, a service that allows multiple VPC networks to interact. This includes VPCs that belong to other AWS account holders. By performing cross account VPC peering, users ensure networks that host and communicate their data are secure. In his session at 20th Cloud Expo, Jay Gordon, a Developer Advocate at MongoDB, will explain how to properly architect your VPC using existing AWS tools and then peer with your MongoDB Atlas cluster. He'll discuss the secur...
Mar. 28, 2017 11:22 AM EDT Reads: 237
SYS-CON Events announced today that CrowdReviews.com has been named “Media Sponsor” of SYS-CON's 20th International Cloud Expo, which will take place on June 6–8, 2017, at the Javits Center in New York City, NY. CrowdReviews.com is a transparent online platform for determining which products and services are the best based on the opinion of the crowd. The crowd consists of Internet users that have experienced products and services first-hand and have an interest in letting other potential buyers...
Mar. 28, 2017 11:00 AM EDT Reads: 3,678
Imagine having the ability to leverage all of your current technology and to be able to compose it into one resource pool. Now imagine, as your business grows, not having to deploy a complete new appliance to scale your infrastructure. Also imagine a true multi-cloud capability that allows live migration without any modification between cloud environments regardless of whether that cloud is your private cloud or your public AWS, Azure or Google instance. Now think of a world that is not locked i...
Mar. 28, 2017 10:54 AM EDT Reads: 236
SYS-CON Events announced today that Infranics will exhibit at SYS-CON's 20th International Cloud Expo®, which will take place on June 6-8, 2017, at the Javits Center in New York City, NY. Since 2000, Infranics has developed SysMaster Suite, which is required for the stable and efficient management of ICT infrastructure. The ICT management solution developed and provided by Infranics continues to add intelligence to the ICT infrastructure through the IMC (Infra Management Cycle) based on mathemat...
Mar. 28, 2017 10:45 AM EDT Reads: 3,275
In his session at Cloud Expo, Alan Winters, an entertainment executive/TV producer turned serial entrepreneur, will present a success story of an entrepreneur who has both suffered through and benefited from offshore development across multiple businesses: The smart choice, or how to select the right offshore development partner Warning signs, or how to minimize chances of making the wrong choice Collaboration, or how to establish the most effective work processes Budget control, or how to m...
Mar. 28, 2017 10:21 AM EDT Reads: 231
SYS-CON Events announced today that Juniper Networks (NYSE: JNPR), an industry leader in automated, scalable and secure networks, will exhibit at SYS-CON's 20th International Cloud Expo®, which will take place on June 6-8, 2017, at the Javits Center in New York City, NY. Juniper Networks challenges the status quo with products, solutions and services that transform the economics of networking. The company co-innovates with customers and partners to deliver automated, scalable and secure network...
Mar. 28, 2017 10:15 AM EDT Reads: 1,541
SYS-CON Events announced today that Interoute, owner-operator of one of Europe's largest networks and a global cloud services platform, has been named “Bronze Sponsor” of SYS-CON's 20th Cloud Expo, which will take place on June 6-8, 2017 at the Javits Center in New York, New York. Interoute is the owner-operator of one of Europe's largest networks and a global cloud services platform which encompasses 12 data centers, 14 virtual data centers and 31 colocation centers, with connections to 195 add...
Mar. 28, 2017 10:00 AM EDT Reads: 1,522
SYS-CON Events announced today that SD Times | BZ Media has been named “Media Sponsor” of SYS-CON's 20th International Cloud Expo, which will take place on June 6–8, 2017, at the Javits Center in New York City, NY. BZ Media LLC is a high-tech media company that produces technical conferences and expositions, and publishes a magazine, newsletters and websites in the software development, SharePoint, mobile development and commercial UAV markets.
Mar. 28, 2017 09:45 AM EDT Reads: 4,416